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4281 - 4290 of 7317 Topics
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Publication
Mitigating placebo effect in human-AI interaction: Expanding the role(s) of the right to notice and explanation
The American Journal of Bioethics -
Publication
The science and art of clinical genetic variant classification and its impact on test accuracy
Annual Review of Genomics and Human Genetics -
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Additional Resource
Consensus Study Report, Cells and Surveys: Should Biological Measures Be Included in Social Science Research? (2001)
This National Academies Press publication documents the evidence-based findings, conclusions, and recommendations of a committee of experts that explored the ethical and legal concerns of collecting…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Research Tool
Setting up a Biorepository (Video), The VALUES Project, The VALUES Project, Patient Values and Attitudes about a Library of Knowledge: Uses of EHRs and Samples in Research
This short (2–3 minute) animated video in one in a series of six, English language videos in this database that describe the concept and process of precision medicine research. The video series was… -
Grant Abstract
Psychosocial Aspects of Genetic Testing for HNPCC
In order to gather important data on the psychosocial and behavioral aspects and sequelae of genetic counseling protocols for hereditary cancer, this investigation will study a consecutive series of…- Attitude
- Belief
- cancer prevention
- cancer registry /resource
- cancer risk
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Publication
Expectation versus reality: The impact of utility on emotional outcomes after returning individualized genetic research results in pediatric rare disease research, a qualitative interview study
PLoS OneClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): R01HG006615, RCHG005491, U01HG006828, U19HD077671 -
Publication
"Not tied up neatly with a bow": Professionals' challenging cases in informed consent for genomic sequencing
J Genet CounsClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01 HG006546, 1U01 HG006487, U01 HG006500, 1U01HG006485 -
Publication
Referencing BRCA in hereditary cancer risk discussions: In search of an anchor in a sea of uncertainty
J Genet CounsClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01HG006487, 2P50HG004488, R00HG008819