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Research Tool
CSER Phase 1: Informed Consent Form and HIPAA Authorization - PediSeq: The Pediatric Genetic Sequencing Project
The purpose of PediSeq: The Pediatric Genetic Sequencing Project was to identify best practices for educating patients about exome and genome sequencing, determining the sequencing data relevent to… -
Video
The Rise of Population Genomic Screening and Associated Ethical, Legal and Social Issues
ELSI • GC Exchange, hosted by The Jackson Laboratory for Genomic Medicine, is an educational series designed for genetic counselors. This series provides a unique opportunity to earn Category 1…- genetic counselor
- Population screening
- Genomic Screening
- healthy population
- sequencing program
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Publication
Genetic testing in the Latinx community: Impact of acculturation and provider relationships
Gynecologic Oncology -
Publication
Evaluating primary care providers’ readiness for delivering genetic and genomic services to underserved populations
Public Health Genomics -
Publication
Genetic counselors' research dissemination practices and attitudes
Journal of Genetic Counseling -
Publication
Genetic nursing: Reflections on the 20th century
Journal of Nursing Education and Practice -
Publication
Psychiatric genetics: A survey of psychiatrists' knowledge, opinions, and practice patterns
J Clin Psychiatry -
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Grant Abstract
Integrating Nurse Champion Model for Group Reproductive Genetic Counseling for Sickle Cell Hemoglobinopathies into Primary Care: A Pilot Implementation Science Study
PROJECT NARRATIVE: Genetic counseling and health education are essential components of any early diagnosis program for sickle cell disease to ensure that risk results are effectively communicated by…- acceptability and feasibility
- Address
- Adopted
- Africa
- Africa South of the Sahara
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Grant Abstract
Mapping Genetic Knowledge: An Anthropological Study
This is a comparative anthropological analysis of the social networks associated with three groups of heritable connective tissue disorders: 1) Marfan syndrome, epidermolysis bullosa and…- behavioral /social science research tag
- bone development disorder
- Clinical Research
- epidermolysis bullosa
- Ethics