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In the Media
F.D.A. Warns Patients About Some Prenatal Genetic Tests
The New York Times |Aatish Bhatia- Newborn screening
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Video
ELSIhub Tour
A video tour of ELSIhub, The Center for ELSI Research and Analysis (CERA)'s web portal. Visit ELSIhub.org to see our newest resources and features! -
Video
Shedding Light on the Use of Population Descriptors in Clinical Genetics
Alice Popejoy, PhD Date: April 29, 2022 Question: How is information about patient race, ethnicity, and ancestry on clinical laboratory requisition forms used in your work? In clinical…- population descriptors
- clinical genetics
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Video
Race, Ethnicity, and Ancestry (REA) in Clinical Genetics: Variability in Collection and Use
Hannah Wand, MS, CGC Date: April 29, 2022 Question: How is information about patient race, ethnicity, and ancestry on clinical laboratory requisition forms used in your work? In clinical…- Race and Ethnicity
- ancestry
- clinical genetics
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Video
The Challenges of Standardization in a System with Complex Incentives
Gillian Hooker, PhD, ScM, CGC Date: April 29, 2022 Question: How is information about patient race, ethnicity, and ancestry on clinical laboratory requisition forms used in your work? In…- Standardization
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Scholar
James Doucet-Battle
- Medical Anthropology
- Science and technology studies
- African genomics
- health disparities
- Bioethics
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Video
Balancing Data Privacy and Data Sharing: Normative and Technical Approaches
ELSI Friday Forum • April 8, 2022 To maximize benefits for patients, broad access to comprehensive genomic datasets is necessary. However, data sharing is in tension with privacy obligations to…- data privacy
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