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Publication
The role of databank managers as guardians of public interests
Science and Engineering EthicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
News
Special Issue Call for Papers: Envisioning a More Just Genomics
Deadline Extended: April 7th, 2023 at 11:59 EST The Center for ELSI Resources and Analysis (CERA) and The Hastings Center are sponsoring a special issue of the Hastings Center Report that looks…- call for submissions
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Publication
NIH panel to limit secrecy on gene therapy
NatureDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Ethical issues in cystic fibrosis newborn screening: From data to public health policy
Current Opinion in Pulmonary MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Research Tool
Data Dictionary: The Influence of Genetic Testing on Redirection of Care in the NICU
Mowery and colleagues conducted a descriptive study characterizing the influence of genetic testing on redirecting care for neo-nates. The data dictionary for this study outlines the structure,… -
Publication
Integrating genomics into Canadian oncology nursing policy: Insights from a comparative policy analysis
Journal of Advanced Nursing -
Video
ELSIcon2022 Networking Session: Ethical Aspects of Reproductive Genetic Carrier Screening: Sharing Insights
ELSIcon2022 • Networking Session • May 31, 2022 Lisa Dive, Ainsley Newson We invite congress attendees with interests in reproductive genetic carrier screening (RGCS) to join us for a discussion…- Live
- Networking Session
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Job Posting
Chair, Department of Medical Ethics and Health Policy
The Perelman School of Medicine at the University of Pennsylvania invites applications and nominations for the position of Chair of the Department of Medical Ethics and Health Policy. Founded in…- medical ethics
- Health Policy
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Research Tool
CSER Phase 2 Follow Through on Medical Actions Attributable to Genomic Testing (MRA) Survey
The Follow Through on Medical Actions Attributable to Genomic Testing Survey, developed by the Clinical Utility, Health Economics, and Policy (CUHEP) working group, measures whether parents of… -
Publication
Financial constraints on genetic counseling and further risk‐management decisions among U.S. women at elevated breast cancer risk
Journal of Genetic Counseling