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Publication
Parents' online portrayals of pediatric treatment and research options
Journal of Empirical Research on Human Research EthicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Additional Resource
Louisiana 2009 State Bills (Louisiana 2009 HB 406)
This bill amends Louisiana's genetic nondiscrimination in health insurance law. The definition of genetic information and genetic test is revised. The bill also prohibits health insurers from…- state bill
- bill
- bill status enacted
- Louisiana
- health insurance
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Additional Resource
Georgia 2007 State Bills (Georgia 2007 HB 276)
This bill creates guidelines such as consent requirements for the creation and storage of biometric information, which is defined to include DNA samples. The bill also prohibits life insurers from…- state bill
- bill
- Georgia
- Consent
- biometric information storage
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Additional Resource
Florida 2020 State Bills (Florida 2020 HB 1189)
Specifies criteria that must be met before a life insurer, long-term care insurer, or disability income insurer may use genetic information for underwriting purposes. Prohibits a life, long-term care…- state bill
- bill
- Florida
- insurance nondiscrimination
- genetic testing
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Publication
Human genome epidemiology: A scientific foundation for using genetic information to improve health and prevent disease
Oxford University PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Duty to warn and genetic disease
Canadian Journal of Cardiovascular NursingDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Risk of tumorigenesis in first-in-human trials of embryonic stem cell neural derivatives: Ethics in the face of long-term uncertainty
Accountability in ResearchDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
An ELSI-Integrated Evaluation of the Family-Level Utility of Pediatric Genomic Sequencing
PROJECT NARRATIVE The goal of the proposed research is to investigate how clinical genomic sequencing impacts families of pediatric patients. This research will develop an empirically informed…- Affect
- American
- Area
- Award
- base
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Grant Abstract
Developing Clinical Translational Tools to Communicate Genetic Risk to Individuals who are at Clinical High Risk for Psychosis
While great strides are being made in identifying early signs that place people at a ?high risk state? for different illness conditions, at the same time, advances are being made in the…- Abbreviations
- Address
- Age
- Attenuated
- base
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Grant Abstract
Cost-effectiveness of Whole Genome Sequencing of Healthy Adults
PROJECT NARRATIVE The central goal of the proposed research is to determine the cost-effectiveness of integrating whole genome sequencing into the care of healthy adults. We will assess the health…- Address
- Adult
- Area
- base
- behavioral response