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Publication
Familial context of genetic testing for cancer susceptibility: Moderating effect of siblings' test results on psychological distress one to two weeks after BRCA1 mutation testing
Cancer Epidemiol Biomarkers Prev -
Video
ELSIcon2022 Paper: Exploitation in Genetics Research: Vulnerability, Unfairness, and Degradation
ELSIcon2022 • Paper • May 27, 2022 Naomi Scheinerman While the concern of “exploitation” features quite prominently in bioethics, such as in patient payment for participation in genetics research,…- Language and categorization
- Biobanking and genomic databases
- Paper
- Pre-Recorded
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Publication
Genes for sale: Ethical reflections on donors' proprietary rights in human genetic derivatives
AshgateDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Expectation versus reality: The impact of utility on emotional outcomes after returning individualized genetic research results in pediatric rare disease research, a qualitative interview study
PLoS OneClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): R01HG006615, RCHG005491, U01HG006828, U19HD077671 -
Publication
The challenge of advances in genetic medicine for the biomedical and organizational ethics of health care delivery
Saint Louis University PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Video
ELSIconversations ELSICon2022: Access to Genetic Screening and Therapies: Case Study of Sickle Cell Disease
Co-Moderators: Liza Johnson, MD, MPH, MSB & Mildred Cho, PhD Presenters: Jeanne O'Brien, MD, MSc & Joshua Combs, MD, FACOG Link to pre-recorded video: Will…- Genetic Screening
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Publication
Access to assisted reproductive technology by people with high genetic risks and transmittable diseases
AshgateDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Barriers in applying to genetic counseling Master's degree programs: Perceptions of prospective applicants when compared with Canadian admissions committee members
Journal of Genetic Counseling -
Grant Abstract
Genetic data partnerships: Enabling equitable access within academic/private data sharing agreements
PROJECT NARRATIVE ?Precision medicine? and other advances in genetic research require access to massive amounts of genetic and related health data, but private genetic datasets are growing rapidly in…- Agreement
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