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Research Tool
Data Dictionary: Video Informed Consent Information (VICI) for Residual Newborn Specimen Research
Rothwell and colleagues developed a video and an app for obtaining consent about allowing newborn blood spots (NBS) to be used as biospecimen resources for biobanking. They conducted focus groups and… -
Grant Abstract
Genome Technology & Reproduction - values & public policy
This project represents a unique effort to give segments of the public an advance look at the emerging genetics technology, to learn from lay and professional communities how they feel about that… -
Research Tool
Codebook: Video Informed Consent Information (VICI) for Residual Newborn Specimen Research
Rothwell and colleagues developed a video and an app for obtaining consent about allowing newborn blood spots (NBS) to be used as biospecimen resources for biobanking. They conducted focus groups and… -
Grant Abstract
Feasibility of an Innovative Method to Understand the Dynamics of Choice and Create Diversity in Genomics Research among Older African Americans
PROJECT NARRATIVE In response to the continued underrepresentation of African Americans in aging research involving genetic material, this study seeks to test the feasibility of an innovative method…- Adult
- African American
- aged
- Aging
- Alzheimer's Disease
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Grant Abstract
Exploring Attitudes About Data Disclosure and Data-Sharing in Genomics Research
Two major issues have garnered significant attention leading to the development of a range of policies regarding data disclosure and data-sharing in biomedical research. While the disclosure of data…- Biomedical Research
- Cities
- Clinical
- Clinical Research
- Communities
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Publication
Genetics, history, and identity: The case of the Bene Israel and the Lemba
Cult Med Psychiatry -
Grant Abstract
Ethics of Dissemination: Communicating with Participants about Genetics Research
Biomedical research involving humans generates results that fall on a continuum of potential interest to participants. Some results, such as blood pressure, have obvious clinical utility, and…- Alaska
- Alaska Native
- arm
- base
- Behavioral Genetics
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Publication
Risk, reward, and the double-edged sword: Perspectives on pharmacogenetic research and clinical testing among Alaska Native people
American Journal of Public Health -
Grant Abstract
The DNA Files
SoundVision Productions, creator of the highly acclaimed, nationally distributed public radio documentary series The DNA Files (1998, 2001), seeks funding for production, marketing, distribution and…- Clinical Research
- education evaluation /planning
- educational resource design /development
- Ethics
- Experimental Designs