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Video
Legal and Policy Challenges to Privacy in the Post-Genomic and Post-Dobbs Era
This ELSI Friday Forum took place on June 9, 2023. Rapid growth in genetic understanding presents challenges for expectant parents, now complicated by the Dobbs decision’s removal of federal…- genetic privacy
- Legal
- Policy
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Video
ELSIcon2022 Paper: Incorporating Patient and Relative Preferences in the Design of Traceback Cascade Testing Initiatives
ELSIcon2022 • Paper • June 3, 2022 Presented by: Katrina Romagnoli Alanna Kulchak Rahm, Cabell Jonas, Tracey Klinger, Leigh Sheridan, Ilene Ladd, Zachary Salvati, Anna DiNucci, Paula Blasi,…- Live
- Paper
- Disclosure of genetic risk information to relatives
- Genetic testing and screening
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Video
ELSIcon2022 Panel: Innovating Equitable Communication Modalities for Patient Activation and Cascade Testing for Familial Hypercholesterolemia: Cases of Ethical, Legal, and Social Complexities from a Pragmatic Trial
ELSIcon2022 • Panel Session • May 27, 2022 Gemme Campbell-Salome, Amy Sturm, Kelly Morgan, Eric Tricou Cascade testing of at-risk relatives can be an effective way to identify individuals…- Pre-Recorded
- Panel
- Disclosure of genetic risk information to relatives
- Genetic testing and screening
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Video
New ACMG Guidance on Carrier Screening: More or Less Equitable?
ELSI Friday Forum • December 10, 2021 Next-generation sequencing capabilities have enhanced general population carrier screening by expanding the number of genes and variants on carrier screening…- carrier screening
- Genetic Counseling
- ethics of prenatal testing
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Video
ELSIcon2022 Flash: Health professionals’ perspectives on the ethics of using COVID-19 host genomic information for clinical and public health decision-making during the pandemic
ELSIcon2022 • Flash • May 31, 2022 Sheethal Jose, Gail Geller, Juli Bollinger, Jeffrey Kahn, Brian Garibaldi Advances in host genomics research can play an important role in enabling…- Live
- Flash
- Population screening and public health genomics
- Genetic testing and screening
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Video
ELSIcon2022 Paper: Is it just for a screening program to give people all the information they want?
ELSIcon2022 • Paper • June 2, 2022 Lisa Dive, Ainsley Newson What normative role should people’s preferences should play in determining access to genomic information, particularly in relation…- Live
- Paper
- Return of Results
- Genetic testing and screening
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Video
ELSIcon2022 Panel: Rare Disease, Equity and Justice: Intersecting Disparities Across the Translational Spectrum
ELSIcon2022 • Panel 9 • June 1, 2022 Holly Tabor, Meghan Halley, Colin Halverson, Aaron Goldenberg The history of genetics is rooted in the characterization and etiology of rare inherited…- Live
- Panel
- Health Disparities
- Access to genetic screening and therapies
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Video
A Qualitative Study to Develop a Privacy and Nondiscrimination Best Practice Framework for Personalized Wellness Programs
Rachele Hendricks-Sturrup, DHSc, MSc, MA - Harvard Pilgrim Health Care Institute and Harvard Medical School ELSIconversations - February 26, 2021 Employers are increasingly partnering with direct-…- Direct to Consumer Genetic Testing
- direct to consumer marketing
- Wellness programs
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Video
ELSI and the New Precision Stewards?
ELSIcon2022 • Pre-recorded Paper Karen Meagher, PhD - Mayo Clinic Sara Watson ELSI and the New Precision Stewards? Advances in pathogen genomics and molecular epidemiology are keeping…- Population Genetics
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Video
ELSIcon2022 Paper: Clinician experiences and perspectives on the use of polygenic risk scores in child and adolescent psychiatry
ELSIcon2022 • Paper • June 1, 2022 Gabriel Lázaro-Muñoz, Eric Storch, Stacey Pereira A growing body of research has begun to uncover the genetic architecture of psychiatric disorders such as…- Live
- Paper
- Screening for polygenic conditions and risk scores
- Genetic testing and screening