The topics page enables quick access to all resource types on
the platform, organized by relevance to your topic.
Popular Searches
Featured Topics
Featured Topics
1 - 10 of 79 Topics
-
Video
Ethical Frameworks for Research Collaboration with Indigenous Communities
Research with Alaska Native and American Indian people has a complex history. American Indian and Alaska Native peoples, are both a racial classification and less known to most Americans, a political… -
Video
Indigenizing Genomics and Advancing Indigenous Data Sovereignty
The ELSI Friday Forum was held on Friday, February 10, 2023. Indigenous peoples have embodied genetic understanding within Indigenous knowledge systems long before encountering settler-science…- Indigenous genomics
- data sovereignty
-
Video
Genomics and Data Sovereignty: Policy and Deliberative Approaches for Engaging Indigenous Communities
ELSI Friday Forum • May 14, 2021 Nanibaa’ Garrison, PhD, moderates the session with panelists Stephanie Russo Carroll, DrPH, MPH, and Justin Lund, MA, discussing Indigenous data sovereignty and…- Indigenous Communities
- Alaska Native/American Indian Health Research
- genomic data sharing policy
- data sovereignty
-
Video
Indigenous Peoples & Genomics: Starting a Conversation
This video is linked to the publication: Indigenous Peoples and Genomics: Starting a Conversation Author Names Jenny Morgan Rachel R. Coe Rochelle Lesueur Ruth Kenny Roberta Price Nancy…- Indigenous Peoples
- Genomics
-
Video
ELSIcon2022 Panel: Engagement with Historically Marginalized Communities: Methods, Positionality and ELSI in Precision Medicine Research
ELSIcon2022 • Panel Session 12 • June 2, 2022 Kyle B. Brothers, Nanibaa' A. Garrison, Maya Sabatello, Amy Lemke The practice of community engaged research is grounded in ethical, practical,…- Live
- Panel
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
-
Video
Developing Pathways for Community-led Research with Big Data: A Content Analysis of Stakeholder Interviews
Megan Doerr, MS, LGC - Sage Bionetworks & Joon-Ho Yu, MPH. PhD - University of Washington ELSIconversations - March 5, 2021 Big data (BD) informs nearly every aspect of our lives and, in health…- Big Data
- Community Engagement
-
Video
ELSIcon2022 Paper: Navigating community engagement in clinical trial research
ELSIcon2022 • Paper • June 1, 2022 Mikaella Caruncho, Jennifer James, Galen Joseph In recent years, community engagement approaches to genomic research have grown in popularity, motivated by…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
-
Video
ELSIconversations: Responsible Stewardship: Establishing Standard Data Elements and a Community of Practice
In the final session, panelists lead the charge for establishing a community of practice that is best able to share experiences across programs. Topics include key data elements, reporting and…- community
-
Video
ELSIcon2022 Paper: Cultivating just & equitable genomics research partnerships with community health centers
ELSIcon2022 • Paper • June 2, 2022 Johanna Crane, Carolyn Neuhaus Research partnerships with community health centers serving ethnically and economically diverse communities present an…- Live
- Paper
- health disparities
-
Video
ELSIcon2022 Panel: Out of the tower and onto the ground: engaging communities and scientists in emergent research priorities
ELSIcon2022 • Panel • May 27, 2022 Sara Ackerman, Julia Brown, Keolu Fox, Sandra Soo-Jin Lee ELSI scholars work under varied institutional support structures that make it difficult to…- Recruiting diverse participants to precision medicine research
- genomics research
- biobank
- equity and justice in genetics
- Panel