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Capacities of Global Institutions for Gene Drive Governance
Gene drive technologies represent a promising approach to the reduction of the global health burden posed by insect-borne infectious diseases like malaria and dengue. The application of new…- Gene Drive Technology
- Global Governance
- regulatory
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News
ELSIconversations with the Ancestry and Diversity Working Group (ADWG) of ClinGen
The initial ADWG ELSIconversations were comprised of a series of three events on population descriptors (e.g., race, ethnicity, and/or ancestry) on clinical genetics laboratory requisition forms.… -
News
ELSIhub Resources for Educators
ELSIhub strives to provide our audience with scholarship, educational content, webinars, community news, and resources focused on the ethical, legal, and social implications (ELSI) of genetics and… -
News
ELSIconversations with the Ancestry and Diversity Working Group (ADWG) of ClinGen
The initial ADWG ELSIconversations were comprised of a series of three events on population descriptors (e.g., race, ethnicity, and/or ancestry) on clinical genetics laboratory requisition forms.… -
News
CERA Co-Director Mildred Cho Recognized for Outstanding Mentorship with Inaugural Bernard Lo, MD Award in Bioethics
Mildred Cho, PhD, Professor of Pediatrics and Medicine at Stanford University, has been named the recipient of The Greenwall Foundation’s inaugural Bernard Lo, MD Award in Bioethics. The Lo Award…- Mildred Cho
- Bioethics Award
- Greenwall Foundation
- Mentorship
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News
The Sulston Project: Making the Knowledge Commons for Interpreting Inherited Cancer Risk More Effective
The Sulston Project is a joint research effort at Arizona State University and Baylor College of Medicine named after John Sulston, the champion of open science who, with Bob Waterston, crafted the…- Genetic Data Sharing and Management
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News
What is the Genomics and Society Working Group at NHGRI?
The Genomics and Society Working Group (GSWG) is the oldest of four working groups established by National Advisory Council for Human Genome Research (NACHGR) (also known as “the council”) to provide… -
News
21,000 GenETHX Records Added to the ELSIhub Publications Database
We are excited to announce the migration of over 21,000 publications from the Genetics and Ethics Database (GenETHX) created by the Bioethics Research Library (BRL), Kennedy Institute of Ethics (KIE…- ELSI publications
- GenETHX
- Georgetown University, Kennedy Institute of Ethics, Bioethics Research Library
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News
Novel Gene Therapies for Pediatric and Young Adults with Sickle Cell Disease: Engaging Patient and Parent Stakeholders Working Group
Sickle Cell Disease (SCD) is an inherited disorder that results in premature mortality and severe morbidity in millions of afflicted individuals worldwide. Novel therapies are urgently needed and…- working group
- gene therapy
- Sickle Cell
- Stakeholder Engagement
- Spotlight
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News
ELSI in Review • January 2024
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our January 2024 set explores experiences with genetic…