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121 - 130 of 677 Topics
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Scholar
Kara Ayers
- disability and reproductive rights
- Disability ethics
- Parenting Education
- Disability rights
- Disability studies
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Scholar
Joel Michael Reynolds
- Bioethics
- Philosophy
- Disability studies
- healthcare justice
- Health Humanities
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Video
ELSIconversations ELSICon2022: Access to Genetic Screening and Therapies: Case Study of Sickle Cell Disease
Co-Moderators: Liza Johnson, MD, MPH, MSB & Mildred Cho, PhD Presenters: Jeanne O'Brien, MD, MSc & Joshua Combs, MD, FACOG Link to pre-recorded video: Will…- Genetic Screening
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Video
Indigenizing Genomics and Advancing Indigenous Data Sovereignty
The ELSI Friday Forum was held on Friday, February 10, 2023. Indigenous peoples have embodied genetic understanding within Indigenous knowledge systems long before encountering settler-science…- Indigenous genomics
- data sovereignty
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Scholar
Rhonda J Moore
- Medical Anthropology
- Bioethic Research
- responsible research and innovation
- individual research results
- race and culture/ethnicity
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Scholar
Anne-Marie Laberge
- public health genetics
- clinical utility
- Return of results & incidental/secondary findings
- ethics of prenatal testing
- Genetic Carrier Screening
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Scholar
Jeanne E O'Brien
- Genetic Testing
- IVF
- Preimplantation Embryos
- Biomedical Ethics
- next generation sequencing
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Video
ELSIconversations: Responsible Stewardship: Establishing Standard Data Elements and a Community of Practice
In the final session, panelists lead the charge for establishing a community of practice that is best able to share experiences across programs. Topics include key data elements, reporting and…- community