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News
Joy Boyer, Reflections on a Career in ELSI
An exceptional team of program directors administers the ELSI Research Program at the National Human Genome Research Institute (NHGRI), the ongoing, extramural funding program that has served as a… -
News
Special Issue Call for Papers: Envisioning a More Just Genomics
Deadline Extended: April 7th, 2023 at 11:59 EST The Center for ELSI Resources and Analysis (CERA) and The Hastings Center are sponsoring a special issue of the Hastings Center Report that looks…- call for submissions
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News
ELSI in Review • February 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our February 2023 set explores concerns about the… -
News
ELSI in Review • January 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our January 2023 set explores the ethics of digital twins in… -
News
ELSIconversations ELSIcon2022 Series
This series included selected recordings from the 2022 ELSI Congress, grouped by topic into four one-hour discussion and networking sessions. The presentation authors briefly recapped their… -
News
ELSIconversations on Population Genetic Screening Programs
Ethical considerations and strategies for launching, evaluating, and improving population genetic screening programs At the ELSI Congress in June 2022, genetic counselor Kim Foss and ELSI… -
News
ELSI in Review • December 2022
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our December 2022 set explores fertility preservation for… -
News
The Genetic Discrimination Observatory: A Key Global Resource in Addressing Genetic Discrimination
UNESCO’s 1997 Universal Declaration on the Human Genome and Human Rights sets up a bold vision, “No one shall be subjected to discrimination based on genetic characteristics that is intended to…- genetic discrimination
- Genomic Information
- Human Rights
- genetic information
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Grant Abstract
Integrating Nurse Champion Model for Group Reproductive Genetic Counseling forSickle Cell Hemoglobinopathies into Primary Care: A Pilot Implementation ScienceStudy
PROJECT NARRATIVE: Genetic counseling and health education are essential components of any early diagnosis program for sickle cell disease to ensure that risk results are effectively communicated by… -
Grant Abstract
University of Michigan Training Program in ELSI Research
PROJECT NARRATIVE Advances in genomic science are rapidly presenting both great opportunities and complex challenges for medicine and public health. In order for the potential benefits of these…- ethical legal social implication
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