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Grant Abstract
Understanding All of Us Enrollees and Decliners Motivations to Enhance Recruitment and Retention
PROJECT NARRATIVE The proposed study contributes to the long-term goal of advancing diverse participation in precision medicine research by mapping the contours of why people, especially African…- African American
- All of Us Research Program
- American
- Biological
- Biomedical Research
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Grant Abstract
Unresolved Issues in Newborn Screening: Quantifying the Harms of a False Positive Result
While newborn screening (NBS) programs have saved the lives of thousands of children with inherited disorders, the future success of this vital public health program depends on the ability to…- adverse outcome
- Behavioral
- Bioethics
- Biometry
- Birth Order
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Grant Abstract
DNA Forensics Science: An Update--Supplement
In 1992, the NRC published 'DNA Technology in Forensic Science.' It was immediately recognized as the consensus of scientific opinion for determining the admissibility of DNA typing as… -
Grant Abstract
Developing Evidence-Based Guidance for Engaging Rural Residents in the Deep South in Genomics Research: A Stakeholder-Driven Perspective
Narrative The diversification of genomics research cohorts is a national priority intended to accelerate research and improve individualized prevention, treatment and care. Concrete, tailored…- Accountability
- Alabama
- Attention
- behavioral sciences
- biobank
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Grant Abstract
Sharing Qualitative Research Data: Identifying and Addressing Ethical and Practical Barriers
Project Narrative This project will identify and reduce ethical and practical barriers to sharing qualitative research data. It will develop new resources to increase data sharing in an ethical…- Addiction
- Address
- Adoption
- Algorithms
- Attitude
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Grant Abstract
Intergenerational Monitoring in Clinical Trials of Germline Gene Editing: Ethical, Legal, and Social Issues
Project Summary The breakneck pace of development towards potential uses of germline gene editing (GGE) in medicine raises some very crucial ethical questions. Though much research still needs to be…- biobank
- Bioethical Issues
- Bioethics
- Bioethics Consultants
- Cell Therapy
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Grant Abstract
SouthCentral Research Foundation NARCH
In the Southcentral Foundation Research Center for Alaska Native Health (RCANH), SCF will position itself to achieve the chief purpose of NARCH - "to reduce health disparities, enhance… -
Grant Abstract
Human Subjects Protections in Prenatal Gene Transfer Research
This project explores whether the current regulations for protecting research subjects will provide adequate protections and guidance for future research involving human prenatal gene therapy. It…- Awareness
- base
- Benefits and Risks
- Child
- design
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Grant Abstract
Return of Results from Psychiatric Genomics Research: Attitudes and Barriers
This project employs a multi-method, transdisciplinary approach that combines ethnographic participant- observation, interview research methods, ethical, legal, and public policy analyses. The two…- Attitude
- authority
- Bipolar Disorder
- Caring
- Case Study
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Grant Abstract
Incidental Enhancement: Addressing a Neglected Policy Issue in Human Genome Editing
PROJECT NARRATIVE This project is relevant to public health because achieving the health benefits of preventive gene editing research will depend on governance that is responsive to public concerns.…- Address
- Affect
- Agreement
- Animal Experimentation
- Animals