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Grant Abstract
Genetic Privacy and Identity in Sexual and Gender Minorities: GetPrISM
PROJECT NARRATIVE Very little research has been done regarding non-STI-related health disparities affecting sexual and gender minorities (SGM). Even less is known about what these minorities think…- Academic Medical Centers
- Address
- Advocate
- Affect
- Attitude
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Grant Abstract
Genetic data partnerships: Enabling equitable access within academic/private data sharing agreements
Candidate: Kayte Spector-Bagdady, JD, MBE, is an attorney and medical ethicist focused on the governance of secondary research use of human specimens and genetic data. Her long-term career goal is to…- career
- career development
- Clinical
- clinical care
- Communities
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Grant Abstract
Academic-Industry Relationships in Genetics
This study will use survey and case study methodologies to examine Academic-Industry Relations (AIRs) in genetics and related fields. Results will contribute to assessment of: 1) how AIRs have…- biotechnology
- Ethics
- Genetics
- governmental health /scientific organization
- Health
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Grant Abstract
A Paradigm Approach to Ethical Problems in Genetics
This project utilizes a method of ethical analysis described as 'paradigm analysis' to develop a comprehensive and systematic framework for ethical issues raised by genomic information in…- behavioral medicine
- Ethics
- gene therapy
- Genetic Counseling
- genetic disorder
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Grant Abstract
The Impact of DNA Typing on Criminal Investigations
The proposed study will investigate the utilization and impact of DNA profiling (DNA 'fingerprinting') in criminal cases, exploring the integration of a powerful new technology into the…- chemical standardization
- criminology
- data collection methodology /evaluation
- diagnosis quality /standard
- DNA footprinting
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Grant Abstract
Patient Preferences for Collecting and Repurposing Genetic, Consumer and Health Care Information
PROJECT NARRATIVE When Americans interact with everyday technology such as mobile applications and websites, they leave behind digital footprints that can reveal a great deal about individual health…- Address
- American
- base
- behavioral health
- Big Data
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Grant Abstract
Public Opinion Deliberation and Decision Making about Genetics Research
How do ordinary Americans make sense of genetic research? How might they decide whether or not to participate in such research? The proposed study aims to address these questions, in a two-year panel…- Attitude
- Baseline Surveys
- Belief
- Complex
- Data
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Grant Abstract
Ethical and Legal Implications of Genetic Testing
This project will examine the ethical, legal and policy issues that arise in using emerging genetic testing technologies in four areas: medical research and practice; the workplace; insurance; and…- biotechnology
- court
- criminology
- Early Diagnosis
- Ethics
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Grant Abstract
Integration of multimodal cancer predisposition genetic counseling practices within the pediatric oncology setting
PROJECT NARRATIVE At least 15% of children with cancer have an underlying genetic cause of their cancer, requiring significant counseling regarding therapy modifications, cancer surveillance, and…- acceptability and feasibility
- Adolescent
- Adopted
- Affect
- Age
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Grant Abstract
Criminal Justice Applications of Genetic Information
The long-term objective of this project is to develop a comprehensive analysis of the emergence of a new technological regime in criminal identification constructed around genetic information. The…- behavioral /social science research tag
- Behavioral Genetics
- biotechnology
- criminal behavior
- criminology