Ethical and Legal Implications of Genetic Testing

This project will examine the ethical, legal and policy issues that arise in using emerging genetic testing technologies in four areas: medical research and practice; the workplace; insurance; and law enforcement. The aims of this project are to: focus ethical and legal deliberations by providing an appropriate context with a solid foundation in science; conduct an examination of the key values and ethical issues that must be considered; and address specific legal problems that require resolution. To accomplish this, a series of three interdisciplinary, invitational conferences that will build upon one another will be held. Thirty-five participants--scientists, health care professionals, legal experts, policymakers, ethicists, industry representatives, and others--will be invited to each conference. The first conference will detail the scientific base of genetic testing and the potential capabilities enhanced by the HGP. The second conference will explore the values and ethical con-cerns that underlie assessment of the social implications of genetic testing as well as the develop-ment of professional standards and public policy. The third conference will address key legal problems and develop recommendations for consideration by lawyers, policymakers and other professional and industry groups. Dissemination strategies for conference findings will include wide distribution of conference reports and final project report, symposia and panels at profes-sional or trade association meetings, and seminars for journalists and policymakers. Conference dates: June, 14-16, 1991, Berkeley Springs, West Virginia; March 13-15, 1992, Charleston, South Carolina; June 18-20, 1992, Los Alamos, New Mexico.