Discover data collection instruments and related materials in the Research Tools database. Please see our FAQ to learn more and email us at [email protected] to contribute your published or unpublished research tools.

Search

Refine Your Search:

Document Type

Research Population

Validated

271 - 276 of 276 Research Tools

Search Help

  • Data Dictionary: Meaning of Screening

    Author(s): Erin Rothwell
    Year: 2015

    This project developed and evaluated the efficacy of a game decision aid among pregnant women about prenatal screening in a randomized controlled study.

    This project developed and evaluated the efficacy of a game decision aid among pregnant women about prenatal screening in a randomized controlled study. The data dictionary for this study outlines the structure, content, and variable definitions for the dataset.

    University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037

    Research Population: Parents
    View online source

  • Data Dictionary: UCEER - SDSU Mapping the Genetics Communication Circuit

    Author(s): Heather Canary
    Year: 2020

    This project brought together health communication experts with diverse areas of expertise to investigate connections among clinical encounters, family decision making conversations, and informatio

    This project brought together health communication experts with diverse areas of expertise to investigate connections among clinical encounters, family decision making conversations, and information networks. The data dictionary for this study outlines the structure, content, and variable definitions for the dataset.

    University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037

    Research Population: Genetic Health Professionals
    View online source

  • Data Dictionary: Utah Genome Project - Informed Consent

    Author(s): Jeff Botkin
    Year: 2016

    This project evaluated simplified tools used to inform the public around the consent process.

    This project evaluated simplified tools used to inform the public around the consent process. The data dictionary for this study outlines the structure, content, and variable definitions for the dataset.

    University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037

    Research Population: General public
    View online source

  • Data Dictionary: Video Informed Consent Information (VICI) for Residual Newborn Specimen Research

    Author(s): Erin Rothwell
    Year: 2018

    Rothwell and colleagues developed a video and an app for obtaining consent about allowing newborn blood spots (NBS) to be used as biospecimen resources for biobanking.

    Rothwell and colleagues developed a video and an app for obtaining consent about allowing newborn blood spots (NBS) to be used as biospecimen resources for biobanking. They conducted focus groups and interviews with three diverse communities to determine (a) how well the consent tools worked and (b) participant familiarity with NBS. The data dictionary for this study outlines the structure, content, and variable definitions for the dataset.

    University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037

    Research Population: General public
    View online source

  • Data Dictionary: Willingness to Pay (WTP)

    Author(s): Erin Rothwell
    Year: 2015

    Rothwell and colleagues used a willingness to pay (WTP) survey to evaluate the values individuals place on the information provided by a genetic counseling consultation providing incidental finding

    Rothwell and colleagues used a willingness to pay (WTP) survey to evaluate the values individuals place on the information provided by a genetic counseling consultation providing incidental findings for cancer causing genes. The data dictionary for this study outlines the structure, content, and variable definitions for the dataset.

    University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037

    Research Population: General public
    View online source

  • Data Dictionary: ENLITE - Evaluating the Benefits and Limitations of Next Generation DTC

    Author(s): Madison Kilbride
    Year: 2023

    Kilbride and colleagues developed this data dictionary for the ENLITE Study. The ENLITE study explored public perceptions and knowledge of direct-to-consumer genetic testing.

    Kilbride and colleagues developed this data dictionary for the ENLITE Study. The ENLITE study explored public perceptions and knowledge of direct-to-consumer genetic testing. The data dictionary for this study outlines the structure, content, and variable definitions for the dataset.

    University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037

    Research Population: General public
    View online source