Discover data collection instruments and related materials in the Research Tools database. Please see our FAQ to learn more and email us at [email protected] to contribute your published or unpublished research tools.
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CSER Phase 1: Male Research Consent and Authorization Form - NextGen: Clinical Implementation of Carrier Testing Using Genome Sequencing
This research consent and authorization form for enrollment in the NextGen trial by male partners of female Kaiser Permanente patients who requested carrier testing for inherited condition or disea
CSER Phase 1: Female Research Consent and Authorization Form - NextGen: Clinical Implementation of Carrier Testing Using Genome Sequencing
This research consent and authorization form for enrollment in the NextGen trial by female Kaiser Permanente patients who requested carrier testing for inherited condition or disease before getting
CSER Phase 1: Informed Consent Document - Genomic Diagnosis in Children with Developmental Delay
This informed consent document for parents and minors in the Genomic Diagnosis in Children with Developmental Delay study includes standard consent language plus consent to storage of specimens for
CSER Phase 1: Consent form - Personalized Oncology Through High-throughput Sequencing: MI-ONCOSEQ (Michigan Oncology Sequencing Center)
This consent form for the Personalized Oncology Through High-throughput Sequencing: MI-ONCOSEQ (Michigan Oncology Sequencing Center) study includes authorization to create cell lines from participa
CSER Phase 1: Adult/parent consent with assent form - Personalized Medicine Based on Molecular Profiling of Patients with Cancer
This consent/ assent form for adults, adolescents, and parents of minors in the Personalized Medicine Based on Molecular Profiling of Patients with Cancer study includes consent to the use of tumor
CSER Phase 1: Parental Consent for Child to Participate in a Research Study, Minor Subjects- Relatives of Study Subject - NCGENES: A Next-Generation Sequencing Platform for Genetic Diagnosis and Research
This parental consent form from the NCGENES: A Next-Generation Sequencing Platform for Genetic Diagnosis study is designed for the minor relatives of NCGENES study participants that received a gene
CSER Phase 1: Assent Form: (Ages 7-14) Relatives of a Study Subjects - NCGENES: A Next-Generation Sequencing Platform for Genetic Diagnosis and Research
This assent form from the NCGENES: A Next-Generation Sequencing Platform for Genetic Diagnosis study is designed for the 7 - 14 year old relatives of NCGENES study participants with a genetic test
CSER Phase 1: Assent Form: (Ages 15-17) Relatives of a Study Subjects - NCGENES: A Next-Generation Sequencing Platform for Genetic Diagnosis and Research
This assent form from the NCGENES: A Next-Generation Sequencing Platform for Genetic Diagnosis study is designed for the adolescent (aged 15-17) relatives of NCGENES study participants with a genet
CSER Phase 1: Consent Form: (Adult Subject) Relatives of a Study Subjects - NCGENES: A Next-Generation Sequencing Platform for Genetic Diagnosis and Research
This consent form from the NCGENES: A Next-Generation Sequencing Platform for Genetic Diagnosis study is designed for the adult relatives of NCGENES study participants with a genetic test result co
CSER Phase 1: Consent Form (Colorectal Cancer/Polyposis) - The NEXT (New EXome Technology in Medicine) Medicine Study
This consent form for the NEXT Medicine Study is designed for individuals with colorectal cancer/polyposis or a close family member with the syndrome.