Discover data collection instruments and related materials in the Research Tools database. Please see our FAQ to learn more and email us at [email protected] to contribute your published or unpublished research tools.

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  • CSER Phase 1: Consent Form (Endometrial/Uterine Cancer) - The NEXT (New EXome Technology in Medicine) Medicine Study

    Author(s): Jarvik, Gail P., Hisama, Fuki |Amendola, Laura
    Year: 2014

    This consent form for the NEXT Medicine Study is designed for individuals with endometrial/uterine cancer or a close family member with this type of cancer.

    This consent form for the NEXT Medicine Study is designed for individuals with endometrial/uterine cancer or a close family member with this type of cancer. It contains information about the study and the researchers involved, the purpose of the study, what is involved in participating, potential risks and benefits of participating, financial questions and answers related to the study, and who to contact with questions.

    Research Population: Adults
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  • CSER Phase 1: Research Participant's Authorization to Disclose/Release Genetic Information - The NEXT (New EXome Technology in Medicine) Medicine Study

    Author(s): Jarvik, Gail P., Hisama, Fuki |Amendola, Laura
    Year: 2013

    The Research Participant's Authorization to Disclose/Release Genetic Information Form for the NEXT (New EXome Technology in Medicine) Medicine Study authorizes the principal investigator of th

    The Research Participant's Authorization to Disclose/Release Genetic Information Form for the NEXT (New EXome Technology in Medicine) Medicine Study authorizes the principal investigator of the study to disclose the participant's genetic research results to a specified person in the case of participant death or incapacitation.

    Research Population: Adults
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  • CSER Phase 1: Genetic Information Nondiscrimination Act (GINA) Fact Sheet: "GINA & You"

    Author(s): Genetic Alliance, The Genetics and Public Policy Center at John Hopkins University, The National Coalition for Health Professional Education in Genetics
    Year: 2010

    This fact sheet describes the rights protected by the Genetic Information Nondiscrimination Act of 2008 in an easy to read format.

    Research Population: Adults
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  • CSER Phase 1: Tumor Mutation Explanation Card

    Author(s): Baylor College of Medicine
    Year: 2012

    This short explanation card defines a tumor mutation and describes what parents of pediatric patients can expect from a tumor mutation report.

    Research Population: Parents
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  • CSER Phase 1: Inherited Mutation Explanation Card

    Author(s): Baylor College of Medicine
    Year: 2012

    This short explanation card defines an inherited mutation and describes the information that parents might find on their child's inherited mutation report.

    This short explanation card defines an inherited mutation and describes the information that parents might find on their child's inherited mutation report.

    Research Population: Parents
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  • CSER Phase 1: X-Linked Explanation Card

    Author(s): Baylor College of Medicine
    Year: 2013

    This short explanation card defines carrier status for X-linked recessive conditions.

    Research Population: Parents
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  • CSER Phase 1: Revised Carrier Status Explanation Card

    Author(s): Baylor College of Medicine
    Year: 2012

    This hort explanation card defines carrier status for recessive genetic conditions.

    Research Population: Parents
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  • CSER Phase 1: ClinSeq Study Brochure

    Author(s): The ClinSeq Research Team
    Year: 2015

    This recruitment brochure for the ClinSeq Study provides details about the study rationale, the risks and benefits associated with participation, and the enrollment procedure.

    Research Population: Adults
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  • CSER Phase 1: CanSeq Study Brochure

    Author(s): Dana-Farber Cancer Institute
    Year: 2015

    This recruitment brochure for the CanSeq Study provides details about the study rationale and information designed to help adults weigh the risks and benefits associated with participation.

    Research Population: Adults
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  • CSER Phase 1: MIONCOSEQ Study FAQs

    Author(s): University of Michigan

    This document provides answers to frequently asked questions for participants in Personalized Oncology Through High-throughput Sequencing: Michigan Oncology Sequencing Center (MI-ONCOSEQ) Study.…

    This document provides answers to frequently asked questions for participants in Personalized Oncology Through High-throughput Sequencing: Michigan Oncology Sequencing Center (MI-ONCOSEQ) Study.

    Research Population: Adults
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