Discover data collection instruments and related materials in the Research Tools database. Please see our FAQ to learn more and email us at [email protected] to contribute your published or unpublished research tools.
71 - 80 of 230
CSER Phase 1: The Institutional and Professional Impact of Genomic Sequencing in Cancer Care Study Protocol
This document is the study protocol of the Institutional and Professional Impact of Genomic Sequencing in Cancer Care study.
CSER Phase 1: The use of sequencing to guide the care of cancer patients (CanSeq) study protocol
This document is the Use of Sequencing to Guide the Care of Cancer Patients study protocol.
CSER Phase 1: Personalized Oncology Through High-throughput Sequencing:
MI-ONCOSEQ Study Protocol
The Personalized Oncology Through High-throughput Sequencing: MI-ONCOSEQ (Michigan Oncology Sequencing Center) (formerly known as “Personalized Medicine Based on Molecular Profiling of Patients wit
CSER Phase 1: Personalized Medicine Based on Molecular Profiling of Pediatric and Young Adult Patients with Cancer Study Protocol
The Personalized Medicine Based on Molecular Profiling of Patients with Cancer implements a mechanism for patients who have advanced or refractory cancer to undergo tumor sequencing, sequence analy
Common survey items, eMERGE participant survey at 0-1 month post disclosure
This survey covers disclosure of genetic test results to family members, plans for follow up care, plans for behavior changes, demographic information, and other topics.
Common survey items, eMERGE participant survey at 6-12 months post disclosure
This survey covers disclosure of genetic test results to family members, follow up care, behavior changes, and other topics. It can be administered using REDCap.
Interview Guide, Moral Views of Gene Drive Technology Experts
This semi-structured interview guide is intended for use with gene drive technology (GDT) experts. It was developed using ethical arguments identified by the authors via literature review.
de Graeff, N., Jongsma, K.R. & Bredenoord, A.L. (2021) Experts’ moral views on gene drive technologies: a qualitative interview study. BMC Med Ethics 22(1), 1-15
Genomics ADvISER is a digital decision aid for use in the delivery of genomic counseling. It is intended as a supplement to genomic counseling with a counselor.
Shickh, S., Rafferty, S. A., Clausen, M., Kodida, R., Mighton, C., Panchal, S., & Bombard, Y., Lorentz, J., Ward, T., Watkins, N., Elser, C., Eisen, A., Carroll, J. C., Glogowski, E., Schrader, K. A., Lerner-Ellis, J., Kim, R. H., Chitayat, D., Shuman, C., Bombard, Y., and Incidental Genomics Study Team (2021). The role of digital tools in the delivery of genomic medicine: Enhancing patient-centered care. Genetics in Medicine, 23(6), 1-9.
CSER Phase 2 Organizational Readiness to Change Assessment
The CSER Organizational Readiness to Change Assessment measures the readiness of healthcare systems to implement clinical sequencing.
CSER Phase 1: Parent Consent Form - Incorporation of Genomic Sequencing into Pediatric Cancer Care Study
This parent consent form was approved by the Institutional Review Board for the Baylor College of Medicine and Affiliated Hospitals for use in the Incorporation of Genomic Sequencing into Pediatric