Research Tools

This 3 minute video was utilized in the ROMP study, which assessed adult patient's attitudes toward research on medical practices in the context of usual care. The video explains medical record review, randomization, and randomization of clinics and hospitals.

This 2 minute video was utilized in the ROMP study, which assessed adult patient's attitudes toward research on medical practices in the context of usual care. The video explains general information, verbal permission, and written agreement.

The PRIM&R Member Survey was used in the ROMP study to elicit the perspectives of a random selection of human subjects research professionals from the Public Responsibility in Medicine and Research membership list on the ethical aspects of activities related to evaluating and improving standard medical practices, including comparative effectiveness research and quality improvement in the context of learning health system.

This plain text script includes descriptions of the three animated videos that were utilized in the ROMP study, which assessed adult patient's attitudes toward research on medical practices in the context of usual care.

This short (2–3 minute) animated video in one in a series of six, English language videos in this database that describe the concept and process of precision medicine research. The video series was developed for the VALUES Project, Patient Values and Attitudes about a Library of Knowledge: Uses of EHRs and Samples in Research, with health communications experts at Booster Shot Media. In the VALUES project, the videos were shown ahead of focus group discussions with a multilingual set of research participants about the use of their EHR data and biospecimens in precision medicine research. For studies that utilize these videos see: Lee, S.S., Cho, M.K., Kraft, S. A., Varsava, N., Gillespie, K., Ormond, K. E., Wilfond, B. S., Magnus, D .(2018) “I don't want to be Henrietta Lacks": Diverse patient perspectives on donating biospecimens for precision medicine research. Genetics in Medicine; Cho, M. K., Varsava, N., Kraft, S. A., Ashwal, G., Gillespie, K., Magnus, D., Ormond, K. E., Thomas, A., Wilfond, B. S., Lee, S. S-J. (2017) Metaphors matter: From biobank to a library of medical Information. Genetics in Medicine; and Kraft, S. A., Cho, M. K., Gillespie, K., Halley, M., Varsava, N., Ormond, K. E., Luft, H. S., Wilfond, B. S., & Lee, S. S-J. (2018) Beyond consent: Building trusting relationships with diverse populations in precision medicine research. American Journal of Bioethics.

This short (2–3 minute) animated video in one in a series of six, English language videos in this database that describe the concept and process of precision medicine research. The video series was developed for the VALUES Project, Patient Values and Attitudes about a Library of Knowledge: Uses of EHRs and Samples in Research, with health communications experts at Booster Shot Media. In the VALUES project, the videos were shown ahead of focus group discussions with a multilingual set of research participants about the use of their EHR data and biospecimens in precision medicine research. For studies that utilize these videos see: Lee, S.S., Cho, M.K., Kraft, S. A., Varsava, N., Gillespie, K., Ormond, K. E., Wilfond, B. S., Magnus, D .(2018) “I don't want to be Henrietta Lacks": Diverse patient perspectives on donating biospecimens for precision medicine research. Genetics in Medicine; Cho, M. K., Varsava, N., Kraft, S. A., Ashwal, G., Gillespie, K., Magnus, D., Ormond, K. E., Thomas, A., Wilfond, B. S., Lee, S. S-J. (2017) Metaphors matter: From biobank to a library of medical Information. Genetics in Medicine; and

This short (2–3 minute) animated video in one in a series of six, English language videos in this database that describe the concept and process of precision medicine research. The video series was developed for the VALUES Project, Patient Values and Attitudes about a Library of Knowledge: Uses of EHRs and Samples in Research, with health communications experts at Booster Shot Media. In the VALUES project, the videos were shown ahead of focus group discussions with a multilingual set of research participants about the use of their EHR data and biospecimens in precision medicine research. For studies that utilize these videos see: Lee, S.S., Cho, M.K., Kraft, S. A., Varsava, N., Gillespie, K., Ormond, K. E., Wilfond, B. S., Magnus, D .(2018) “I don't want to be Henrietta Lacks": Diverse patient perspectives on donating biospecimens for precision medicine research. Genetics in Medicine; Cho, M. K., Varsava, N., Kraft, S. A., Ashwal, G., Gillespie, K., Magnus, D., Ormond, K. E., Thomas, A., Wilfond, B. S., Lee, S. S-J. (2017) Metaphors matter: From biobank to a library of medical Information. Genetics in Medicine; and Kraft, S. A., Cho, M. K., Gillespie, K., Halley, M., Varsava, N., Ormond, K. E., Luft, H. S., Wilfond, B. S., & Lee, S. S-J. (2018) Beyond consent: Building trusting relationships with diverse populations in precision medicine research. American Journal of Bioethics.

This short (2–3 minute) animated video in one in a series of six, English language videos in this database that describe the concept and process of precision medicine research. The video series was developed for the VALUES Project, Patient Values and Attitudes about a Library of Knowledge: Uses of EHRs and Samples in Research, with health communications experts at Booster Shot Media. In the VALUES project, the videos were shown ahead of focus group discussions with a multilingual set of research participants about the use of their EHR data and biospecimens in precision medicine research. For studies that utilize these videos see: Lee, S.S., Cho, M.K., Kraft, S. A., Varsava, N., Gillespie, K., Ormond, K. E., Wilfond, B. S., Magnus, D .(2018) “I don't want to be Henrietta Lacks": Diverse patient perspectives on donating biospecimens for precision medicine research. Genetics in Medicine; Cho, M. K., Varsava, N., Kraft, S. A., Ashwal, G., Gillespie, K., Magnus, D., Ormond, K. E., Thomas, A., Wilfond, B. S., Lee, S. S-J. (2017) Metaphors matter: From biobank to a library of medical Information. Genetics in Medicine; and Kraft, S. A., Cho, M. K., Gillespie, K., Halley, M., Varsava, N., Ormond, K. E., Luft, H. S., Wilfond, B. S., & Lee, S. S-J. (2018) Beyond consent: Building trusting relationships with diverse populations in precision medicine research. American Journal of Bioethics.