Bioethics Clinical Research Associate The Center for Medical Ethics and Health Policy at Baylor College of Medicine is seeking a full-time Clinical Research Associate for a non-laboratory research position. The individual hired will be responsible for providing research support on various research projects related to bioethics and health policy. The Clinical Research Associate will be part of an interdisciplinary team of researchers led by Dr. Amy McGuire, the Leon Jaworski Professor of Medical Ethics and Director of the Center for Medical Ethics and Health Policy.
The incorporation of genetics and genomics into medical care and the public domain raises new challenges for how we understand privacy and identity, concepts that have long been closely linked in American discourse.
PROJECT NARRATIVE Investigative genetic genealogy, a technique used by law enforcement to generate leads in criminal cases through searches of genetic genealogy databases, raises important privacy concerns for database participants and their families. This project will measure public preferences related to law enforcement participation in genetic genealogy databases and develop best practices for investigative genetic genealogy that operationalize these preferences by engaging experts and relevant constituencies.
PROJECT NARRATIVE Research in reproductive genomics is shifting, from diagnostics to interventions in the human genome, epigenome, and microbiome. But we lack ethical guidance about how to conduct these human trials without causing undue harm, especially in regard to the women participants who are a necessary part of such trials. By building an ethical framework and a toolkit to guide researchers and institutional review boards, this project will create robust guidance for research in reprogenomics and a broadened consensus on these technologies among key professional bodies.