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This study evaluated public opinion about the policies and practices relevant to the retention and use of residual bloodspots for biomedical research. The data dictionary outlines the structure,…

Rothwell and colleagues surveyed patients to assess the financial burden of genetic testing. The data dictionary for this study outlines the structure, content, and variable definitions for the…

Mowery and colleagues conducted a descriptive study characterizing the influence of genetic testing on redirecting care for neo-nates. The data dictionary for this study outlines the structure,…

The aim of this study was to develop a gaming prototype for decision making about pre-implantation genetic screening (PGS) with in vitro fertilization. The data dictionary for this study outlines the…

This study investigated the efficacy and impact of prenatal education about newborn screening and use of residual dried blood spots (DBS) in research. The data dictionary outlines the structure,…

REDCap data dictionary for the project "Carrier Screening Decision-making: An Experimental Study of Media Influences on Conversational Development and Outcomes." The data dictionary…

The aim of this project is to gain understanding of the implications of alternate concepts of genetic causation for theoretical work in behavior genetics and for interventions and therapies arising…

Case and colleagues developed an educational intervention (CRiTICS) for providers' communication of a positive prenatal genetic screening result. The data dictionary for this study outlines the…

Rothwell and colleagues developed a video and an app for obtaining consent about allowing newborn blood spots (NBS) to be used as biospecimen resources for biobanking. They conducted focus groups and…

Kilbride and colleagues explored public perceptions and knowledge of direct-to-consumer genetic testing. The REDCap codebook for this study outlines each data element of the survey, including the…