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Rothwell and colleagues used a willingness to pay (WTP) survey to evaluate the values individuals place on the information provided by a genetic counseling consultation providing incidental findings…

This project evaluated simplified tools used to inform the public around the consent process. The REDCap codebook for this study outlines each data element of the survey, including the questions…

This project brought together health communication experts with diverse areas of expertise to investigate connections among clinical encounters, family decision making conversations, and information…

This project developed and evaluated the efficacy of a game decision aid among pregnant women about prenatal screening in a randomized controlled study. The REDCap codebook for this study outlines…

Rothwell and colleagues assessed the short-term impact of the play "Informed Consent" by Deborah Zoe Laufer (a fictionalized look at the controversy over specimens collected from the…

This study assessed the impact of a video and survey about expanded carrier screening on patient knowledge and decision making. The REDCap codebook for this study outlines each data element of the…

Rothwell and colleagues surveyed patients to assess the financial burden of genetic testing. The REDCap codebook for this study outlines each data element of the survey, including the questions…

Mowery and colleagues conducted a descriptive study characterizing the influence of genetic testing on redirecting care for neo-nates. The REDCap codebook for this study outlines each data element of…

This survey was administered to pediatricians' during pediatric grand rounds to assess understanding of children's health rights. The REDCap codebook for this study outlines each data…

This study investigated the efficacy and impact of prenatal education about newborn screening and use of residual dried blood spots (DBS) in research. The REDCap codebook for this study outlines each…