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This study compares two CF carrier screening arrangements: a 'local screen' with pre-screening education provided by a pamphlet and a blood sample drawn by a private physician or public…

The purpose of this project is to develop models for broad-based community dialogue to examine the value and ethical dimensions of emerging technologies in applied human genetics. The project will be…

The long term objectives of this project are to develop an integrated package of public and professional education materials that would meet the pre-screening needs for education and informed consent…

To complement his theoretical work, Dr. Asch will also be leading a project to assess the amount of information that couples desire about the risk of CF. The appropriate timing of CF carrier…

Dr. Asch will be conducting a prescriptive decision analysis for CF screening programs, which will use decision theory and economic techniques to model decision-making about CF carrier testing. The…

This project will focus on individuals and families receiving care from a health maintenance organization. The assessment of the ethical and policy issues in CF screening seeks to determine the level…

The Center for Theology and the Natural Sciences will monitor the ongoing research of the HGP by drawing out its implications for theology and ethics. The project's long range value will be to…

This project will provide an overview of the impact of the HGP on access to health care. In addition to scholarly articles, the product of this research will be a book on the HGP and access to health…

Using historical methods, this project explores the relevance of eugenics to genomics for the specific case of cancer theory and policy. The project will first examine the history of eugenics to see…

The objectives of this project are to determine the impact of the HGP on women, to examine whether this impact meets standards of fairness or gender justice, and to identify ways of avoiding or…