• NIH Sep 30, 1991 | R01

    How Much Information about the Risk of Cystic Fibrosis Do Couples Want to Know?

    Principal Investigator(s): Asch, David

    Institution: University of Pennsylvania

    FOA Number: RFA-HG-91--01

    Abstract

    To complement his theoretical work, Dr. Asch will also be leading a project to assess the amount of information that couples desire about the risk of CF. The appropriate timing of CF carrier screening, as well as the amount that should be performed, will be investigated. The research team will analyze the decision-making processes of couples who are offered CF carrier testing one partner at a time. In the event of a negative result for the first partner, the team will determine whether or not the couple chooses to have the second partner tested. In this way, the team will determine the utility of obtaining less than the maximum information available from screening. (Member of Cystic Fibrosis Studies Consortium--CFSC)

    FUNDING AGENCY:

    Funder:
    NIH

    Institute:
    NATIONAL HUMAN GENOME RESEARCH INSTITUTE

    Funding Type:
    R01

    Project Number:
    R01HG000616

    Start Date:
    Sep 30, 1991

    End Date:
    Aug 31, 1995

    PROJECT TERMS:

    Cystic Fibrosis, Decision Making, disease /disorder proneness /risk, gene mutation, Genetic Counseling, genetic disorder diagnosis, health care model, Judgment, Motivation, preference, Prenatal Diagnosis, Questionnaires, Self Concept

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