NIH Sep 30, 1991 | R43

Cystic Fibrosis Carrier Screening Educational Materials

Principal Investigator(s): Magyari, Trish

Institution: MACRO International, Inc.

FOA Number: N/A

Abstract

The long term objectives of this project are to develop an integrated package of public and professional education materials that would meet the pre-screening needs for education and informed consent of the public, and for the professional offering the testing. The materials would utilize innovative technology such as interactive computers, and would be developed for the average reader. Specific Phase I aims are to 1) assess pertinent content and innovative modes of delivery, 2) develop a preliminary design for the integrated package of materials, 3) complete a prototype of prescreening material for use with the general public, and 4) prepare a final design document for Phase II. Specific Phase II aims are: 1) to develop an integrated package of education materials that provides a thorough discussion of CF carrier screening which will allow the public to decide whether the test is appropriate for them, a companion video, and a professional education manual; 2) to conduct formative and outcome evaluation activities, with particular emphasis on validity, reliability and acceptability to potential users; evaluation activities will take place at a variety of clinical sites to allow for differences in setting, target population and testing modalities; and 3) to identify appropriate distribution modalities. (Funded by NIDDK. Member of CFSC)

FUNDING AGENCY:

Funder:
NIH

Institute:
NATIONAL INSTITUTE OF DIABETES AND DIGESTIVE AND KIDNEY DISEASES

Funding Type:
R43

Project Number:
R43DK044794

Start Date:
Sep 30, 1991

End Date:
Mar 31, 1992

PROJECT TERMS:

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