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Video
Q&A with Guest Editors of Hastings Report Special Issue
CERA/Hastings Center Report Special Issue: Envisioning A More Just Genomics. The Center for ELSI Resources and Analysis (CERA) and The Hastings Center are sponsoring a special… -
Video
ELSIconversations ELSICon2022: Access to Genetic Screening and Therapies: Case Study of Sickle Cell Disease
Co-Moderators: Liza Johnson, MD, MPH, MSB & Mildred Cho, PhD Presenters: Jeanne O'Brien, MD, MSc & Joshua Combs, MD, FACOG Link to pre-recorded video: Will…- Genetic Screening
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Video
Indigenizing Genomics and Advancing Indigenous Data Sovereignty
The ELSI Friday Forum was held on Friday, February 10, 2023. Indigenous peoples have embodied genetic understanding within Indigenous knowledge systems long before encountering settler-science…- Indigenous genomics
- data sovereignty
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Video
ELSIconversations: Responsible Stewardship: Establishing Standard Data Elements and a Community of Practice
In the final session, panelists lead the charge for establishing a community of practice that is best able to share experiences across programs. Topics include key data elements, reporting and…- community
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Video
Constructing Strategies to Address and Assess Equity, Outreach, and Impact
The second session highlights strategies and solutions to some of the issues raised in Session 1. There is a specific focus on community engaged research and implementation strategies that target…- community based research
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Video
Illuminating Ethical Issues Encountered in Population Screening Programs
In the first of three sessions, panelists with experience with population genetic screening programs will discuss issues that have arisen with existing screening programs. Topics may include ethical…- Population screening and public health genomics
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Video
Wrestling with Social and Behavioral Genomics
Social and behavioral genomics research uses huge sets of genetic data in attempts to shed light on phenotypes from smoking and eating behaviors, to psychiatric disorders, to sexuality and…- Sociobehavioral genetics
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Video
ELSIcon2022 Paper: The lack of a standard definition of clinical utility limits the assessment of the clinical impacts of whole exome/whole genome sequencing
ELSIcon2022 • Paper • May 31, 2022 Claudia Azuelos, Anne-Marie Laberge Background: Whole-exome sequencing (WES) and whole-genome sequencing (WGS) are diagnostic tests for rare genetic diseases.…- Live
- Paper
- Language and categorization
- Genetic testing and screening
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In the Media
New DNA Analysis Supports an Unrecognized Tribe’s Ancient Roots in California
The New York Times |Sabrina Imbler- Genetics and Human Ancestry
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In the Media
They Created a Drug for Susannah. What About Millions of Other Patients?
The New York Times |Erika Check Hayden- rare genetic disease