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Ethical, Legal and Social Implications (ELSI) Research (R01 Clinical Trial Optional)
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ELSI in Review • November 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our November 2023 set explores the ethics of risk prediction… -
News
TraineeHub: Mock Grant Reviews
"Mock Grant Reviews" took place on October 25, 2023. Some things are best learned by getting your hands dirty—and grantsmanship, including peer review of NIH grants, is one such thing. What…- grant applications
- Program Research Project Grants
- National Institutes of Health (NIH)
- Grant Scoring
- Peer Review
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News
Navigating Consumer Protections for Genomics and Precision Health: An Interview with Jennifer K. Wagner and Abdulai I. Rashid
Despite their increasingly critical importance, consumer protections available from the Federal Trade Commission (FTC) and state Attorneys General related to the direct-to-consumer genomics and… -
News
ELSI Presentations at ASBH 2023
The following is a list of ELSI and ELSI-related sessions at ASBH 2023. Please email us at [email protected] if you would like to add your presentation. Thursday, October 12, 2023 ELSI Affinity… -
News
How Does Genetic Ancestry Testing Affect Perceptions of Race? Wendy Roth and Ariela Schachter Share Insights and Research Tools from New Study
Genetic Ancestry Testing (GAT) has rapidly grown in popularity. In 2022, an estimated one-in-five U.S. adults, approximately 50 million Americans, reported using a mail-in DNA testing service. As… -
Research Tool
Inteview Guide: Knowledge and Attitudes about Privacy and Secondary Data Use among African-Americans Using Direct-to-Consumer Genetic Testing
Ziegler and colleagues developed this semi-structured, qualitative, interview guide to elicit perspectives from Black/African-American participants on direct-to-consumer genetic testing. Topics… -
Research Tool
Interview Guide: Diverse Parental Perspectives of the Social and Educational Needs for Expanding Newborn Screening through Genomic Sequencing
Timmins and colleagues created this semi-structured interview guide to explore parents' perspectives on expanded newborn screening through genomic sequencing. Questions explore parent's… -
Research Tool
The Public Understanding and Attitudes towards Genetics and Genomics (PUGGS) Questionnaire
Carver and colleagues developed the Public Understanding and Attitudes towards Genetics and Genomics (PUGGS) questionnaire to assess college students' knowledge of genetics, including gene-… -
Research Tool
How Does Genetic Ancestry Testing Affect Perceptions of Race? Conjoint Survey Instrument
The Conjoint Survey Instrument is a survey instrument developed for the study “How Does Genetic Ancestry Testing Affect Perceptions of Race?” The study explores how respondents make racial…