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Grant Abstract
Genetic Counselors as Educators on Human Genome Issues
This project will utilize the expertise of genetic counselors in developing, implementing and evaluating education programs for health professionals which focus on the clinical applications of human…- curriculum
- Diagnostic tests
- Ethics
- Genetic Counseling
- genetic disorder diagnosis
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Grant Abstract
Organizing the HGI: Social Impact and Technology Design
This sociological study is a prospective field research project on the development of the human genome initiative during the first half of the 1990's. The study is examining how the genomics…- comprehensive medical planning
- Decision Making
- Ethics
- Genome
- health /scientific organization
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Grant Abstract
Cystic Fibrosis Mutation Screening and Counseling
Women of reproductive age and the partners of those who test positive will be screened for CF mutations by new methods of rapid DNA analysis in this pilot study. The target population includes large…- African American
- Asian Americans
- Blood Tests
- caucasian American
- Cystic Fibrosis
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Grant Abstract
Labor Conference on the Workplace and the Human Genome
This conference will bring together experts in science, ethics, and law, with experts in knowing and representing the needs of American Workers. The conference will build a base of knowledge among…- Ethics
- Genome
- Health behavior
- health insurance
- health science research
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Grant Abstract
Two Units: Molecular Genetics and Environmental Chemistry
This project will develop a nine-week module to be used in the biology curriculum for high school students, as part of the NIH/ADAMHA Science Education Partnership awards. The module, 'Molecular…- Biology
- Chemistry
- computer program /software
- Computer Simulation
- Continuing Education
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Grant Abstract
Cystic Fibrosis Screening: An Alternative Paradigm
The major goal of this study is to determine the feasibility of a CF screening program that, while incorporating pre- and post-test education for people with negative screening tests, provides…- Blood Tests
- Cystic Fibrosis
- diagnosis design /evaluation
- diagnosis quality /standard
- Ethics
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Grant Abstract
Perception of Carrier Status by Cystic Fibrosis Siblings
This project seeks to delineate problems to be addressed in testing programs in this study of perception of carrier status by CF siblings. By interviewing the adult siblings of CF patients and the CF…- Anxiety
- caucasian American
- Cognition
- Cystic Fibrosis
- depression
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Grant Abstract
An Evaluation of Testing and Counseling for CF Carriers
This study compares two CF carrier screening arrangements: a 'local screen' with pre-screening education provided by a pamphlet and a blood sample drawn by a private physician or public…- Blood Tests
- Cystic Fibrosis
- diagnosis design /evaluation
- gene mutation
- Genetic Counseling
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Grant Abstract
Societal Impact of Human Genetic Engineering
The purpose of this project is to develop models for broad-based community dialogue to examine the value and ethical dimensions of emerging technologies in applied human genetics. The project will be…- curriculum
- Ethics
- genetic disorder
- genetic manipulation
- human population genetics
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Grant Abstract
Cystic Fibrosis Carrier Screening Educational Materials
The long term objectives of this project are to develop an integrated package of public and professional education materials that would meet the pre-screening needs for education and informed consent…- autosomal recessive trait
- computer human interaction
- Cystic Fibrosis
- Genetic Counseling
- genetic disorder