• NIH Sep 30, 1991 | R01

    Cystic Fibrosis Screening: An Alternative Paradigm

    Principal Investigator(s): Phillips III, John Atlas

    Institution: Vanderbilt University

    FOA Number: RFA-HG-91--01

    Abstract

    The major goal of this study is to determine the feasibility of a CF screening program that, while incorporating pre- and post-test education for people with negative screening tests, provides personal counseling primarily for those who test positive for CF carrier status. The Vanderbilt research team will develop written and video materials, examine various settings for provision of carrier testing and determine the preferred setting from the consumer's viewpoint for provision of CF carrier testing, determine the factors that affect a couple's decision whether or not to be tested for CF carrier status, and determine general acceptance of population screening. (Member of CFSC)

    FUNDING AGENCY:

    Funder:
    NIH

    Institute:
    NATIONAL HUMAN GENOME RESEARCH INSTITUTE

    Funding Type:
    R01

    Project Number:
    R01HG000638

    Start Date:
    Sep 30, 1991

    End Date:
    Jun 30, 1995

    PROJECT TERMS:

    Blood Tests, Cystic Fibrosis, diagnosis design /evaluation, diagnosis quality /standard, Ethics, gene mutation, Genetic Counseling, genetic disorder diagnosis, health care cost /financing, human population study, human subject, statistics /biometry, videotape /videodisc

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