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News
ELSI in Review • June 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our June 2023 set explores transparency in secondary use… -
Video
Value and Values in Payment for Gene Therapies
The ELSI Friday Forum was held on May 12, 2023. Advances in gene therapies for monogenic disorders have brought hope of curative treatment. Since the Food and Drug Administration first approved a…- gene therapies
- cost of gene therapies
- payment
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Video
Exploring Complexity in the Biology Classroom: Beyond Mendel: Leading with Complexity when Teaching Human Genetics
Presenters: Shawneequa Callier, JD, MA & Eimear Kenny, PhD Moderator: Rob O'Malley, PhD Date: May 11 2023 3-4 pm PT / 6-7 pm ET Teaching Mendelian patterns of inheritance is a…- biology education
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News
Engaging Underrepresented Communities in Research
Attention to the unique inclusion and engagement needs of understudied populations is of critical importance to the advancement of genomic and precision medicine research, the elimination of health… -
News
ELSI in Review • May 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our May 2023 set explores the utility of ChatGPT in… -
Video
Visual Storytelling in ELSI Research
The ELSI Friday Forum was held on Friday, April 14, 2023. “A picture is worth a thousand words” - this widely understood sentiment could play a vital role in ELSI research and communication about…- Visual storytelling
- Community Engagement
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Video
Exploring Difference in the Biology Classroom: What Genetic Ancestry Tests Mean (and What They Don't)
Presenters: Janina Jeff, PhD, MS & Jada Benn Torres, PhD Co-Moderators: Rob O'Malley, PhD & Nadine Vincenten, PhD Date: April 11 2023, 3-4 pm PT / 6-7 pm ET Genetic…- DTC
- genetic ancestry testing
- race and genetics
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News
ELSI in Review • April 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our April 2023 set explores AI innovations in the Tanzanian… -
Video
The Genie Is Out of the Bottle for Polygenic Screening of Embryos: Where To From Here?
The ELSI Friday Forum was held on Friday, March 10, 2023. A growing number of private companies are offering prospective parents using in-vitro fertilization polygenic screening of embryos to…- Polygenic Screening of Embryos
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Video
ELSIcon2022: Paper Session 11
ELSIcon2022 • Paper Session 11 • June 2, 2022 Includes discussion material from Anya Prince, Jessica L. LeBlanc, Lisa Dive and Ainsley Newson.- Genetic testing and screening
- Live
- Paper