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In the Media
U.K. approves world’s first CRISPR-based medicine, giving green light to therapy for sickle cell, thalassemia
Stat News |Regulators in the U.K. on Thursday approved a CRISPR-based medicine to treat both sickle cell disease and beta thalassemia, making it the world’s first therapy built on the revolutionary gene-editing…- CRISPR
- CRISPR gene therapy
- Sickle Cell
- Thalassemia
- gene therapy
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News
National Library of Medicine (NLM) Digitized Document Collection from USPHS Untreated Syphilis Study at Tuskegee
CERA is pleased to share the announcement that the NLM has digitized a collection of 3,000 documents related to the U.S. Public Health Service (USPHS) Untreated Syphilis Study at Tuskegee,… -
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Scholar
Ann M Mc Cartney
- Bioethics
- Ethical Legal and Social Implications (ELSI)
- Bioinformatics
- Genomics
- Indigenous data
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Video
The Genomics of PTSD Risk: Scientific and Ethical Perspectives
This ELSI Friday Forum took place on November 10, 2023. Post-traumatic stress disorder (PTSD) can develop following a traumatic event such as natural disaster, sexual or physical assault, or war.…- Trauma
- Polygenic risk scores
- Veterans
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Collection
Screening Embryos for Psychiatric Conditions: Public Perspectives, Ethical and Social Issues
The number of genomic loci identified to be associated with psychiatric disorders have substantially increased over the last decade. Alongside developments in polygenic embryo screening (PES; or PGT-…- polygenic embyro screening
- Polygenic risk scores
- Psychiatry
- Reproductive Decision Making
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Funding Opportunity
Ethical, Legal and Social Implications (ELSI) Small Research Grant (R03 Clinical Trial Optional)
- ELSI
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Funding Opportunity
Ethical, Legal and Social Implications (ELSI) Research (R01 Clinical Trial Optional)
- ELSI
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Publication
Editorial: Toward a better understanding and application of benefit sharing in genomic and global health research
Frontiers in Genetics