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Publication
From genes to policy: Mission-oriented governance of plant-breeding research and technologies
Frontiers in Plant Science -
Publication
Researching the future: Scenarios to explore the future of human genome editing
BMC Medical Ethics -
Publication
Patient priorities for fulfilling the principle of respect in research: Findings from a modified Delphi study
BMC Medical EthicsParticipants in this study by Kraft, Duenas, and Shah said informed consent and interpersonal interactions were most important to their experience of respect in the research context. -
Publication
Genomics research with undiagnosed children: Ethical challenges at the boundaries of research and clinical care
Journal of PediatricsHalley and colleagues find that parents of undiagnosed children seeking enrollment in genomic diagnosis research are at risk of “diagnostic misconception”. Although individual diagnosis is a stated… -
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Publication
Understanding genetic justice in the post-enhanced world: a reply to Sinead Prince
Journal of Medical Ethics -
Publication
Are we nearly there yet? Starts and stops on the road to use of polygenic scores
Journal of Community Genetics -
Publication
Considerations for addressing bias in artificial intelligence for health equity
NPJ Digital Medicine -
Publication
Parameters, practices, and preferences for regulatory review of emerging biotechnology products in food and agriculture
Frontiers in Bioengineering and Biotechnology -
Publication
Receiving de novo genetic diagnoses for autism with intellectual disability: Parents' views of impacts on families' reproductive decisions
Journal of Community Genetics