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Video
Genomics and Data Sovereignty: Policy and Deliberative Approaches for Engaging Indigenous Communities
ELSI Friday Forum • May 14, 2021 Nanibaa’ Garrison, PhD, moderates the session with panelists Stephanie Russo Carroll, DrPH, MPH, and Justin Lund, MA, discussing Indigenous data sovereignty and…- Indigenous Communities
- Alaska Native/American Indian Health Research
- genomic data sharing policy
- data sovereignty
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Scholar
Julia EH Brown
- Psychiatry
- Medical Anthropology
- genomic data sharing
- Psychosocial Influences
- health disparities
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Scholar
Stephen T. McGarvey
- non-communicable disorders
- genetic epidemiology
- low and middle-income countries
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News
Why it is Important to Call Out Racist Language Amongst Our Professional Peers
Recently, on a panel at a conference of a medical professional society, the president of the society used a racist term that is an ethnic slur used to refer to Asians. The speaker did not publicly…- racism
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Publication
Operationalizing the CARE and FAIR Principles for Indigenous data futures
Scientific Data -
Publication
Fostering ethical, legal, and social implications research in tribal communities: The Center for the Ethics of Indigenous Genomic Research
Journal of Empirical Research on Human Research Ethics -
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Publication
Deliberations about genomic research and biobanks with citizens of the Chickasaw Nation
Frontiers in Genetics