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  • Publication

    Biobanking DNA

    American journal of medical genetics
    Staff, Editorial
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…

  • Publication

    In their own words: Reports of stigma and genetic discrimination by people at risk for Huntington disease in the International RESPOND‐HD study

    American journal of medical genetics
    Williams, Janet K, Erwin, Cheryl, Juhl, Andrew R, Mengeling, Michelle, Bombard, Yvonne, Hayden, Michael R, Quaid, Kimberly, Shoulson, Ira, Taylor, Sandra, Paulsen, Jane S;
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…

  • Publication

    Development of a culturally tailored genetic counseling booklet about hereditary breast and ovarian cancer for Black women

    American journal of medical genetics
    Permuth-Wey, Jennifer, Vadaparampil, Susan, Rumphs, Alnecia, Kinney, Anita Yeomans, Pal, Tuya
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…

  • Publication

    Consent for genetic research in the Framingham Heart Study

    American journal of medical genetics
    Levy, Daniel, Splansky, Greta Lee, Strand, Nicolle K., Atwood, Larry D., Benjamin, Emelia J., Blease, Susan, Cupples, L Adrienne, D'Agostino, Ralph B., Sr., Fox, Caroline S., Kelly-Hayes, Margaret, Koski, Greg, Larson, Martin G., Mutalik, Karen M., Oberacker, Eliz
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…

  • Publication

    When should pediatric biobanks share data?

    American Journal of Medical Genetics
    Levenson, Deborah
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…

  • Publication

    SCID suggested for uniform newborn screening panel

    American journal of medical genetics
    Levenson, Deborah
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…

  • Publication

    Too much? Not enough?

    American journal of medical genetics
    Levenson, Deborah
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…

  • Publication

    Is there a better way to get consent for bloodspot use?

    American journal of medical genetics
    Levenson, Deborah
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…

  • Publication

    Perception, experience, and response to genetic discrimination in Huntington disease: The international RESPOND-HD study

    American journal of medical genetics
    Erwin, Cheryl, Williams, Janet K, Juhl, Andrew R, Mengeling, Michelle, Mills, James A, Bombard, Yvonne, Hayden, Michael R, Quaid, Kimberly, Shoulson, Ira, Taylor, Sandra, Paulsen, Jane S;
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…

  • Publication

    The right to ignore genetic status of late onset genetic disease in the genomic era; Prenatal testing for Huntington disease as a paradigm

    American journal of medical genetics
    Erez, A, Plunkett, K, Sutton, V R, McGuire, A L
    Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…