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Ethical, Legal, and Social Implications (ELSI) at the Intersection of Genomics and Infectious Disease
Scientific and technological advances in the field of genomics have the potential to enable targeted clinical and public health measures to manage infectious disease outbreaks. The convergence of the…- genomics and infectious disease
- Covid-19
- ethical conduct of phylogenetic studies
- host genome testing
- data justice
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Collection
Race, Genetics, and Genetics Education
The completion of the Human Genome Project in 2003 opened up the floodgates of genetic data, ushering in rapid technological and scientific change. Today, the decreasing costs of genome sequencing…- race and genetics
- genetic education
- Racial essentialism
- Prejudice
- Racial conceptualization
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Video
Migrant DNA: Context, Ethics and Legal Issues
This ELSI Friday Forum considers the ethical, social, and legal implications of the diverse applications of DNA technologies that impact migrants entering or resident in the United States. When…- Immigrants
- DNA testing
- human migration
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In the Media
Sickle Cell Treatment Not Linked to Cancer, Researchers Say
The New York Times |Gina Kolata- sickle cell disease
- gene therapies
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Additional Resource
Ethics Committee Opinion, Interests, Obligations, and Rights in Gamete and Embryo Donation, American Society for Reproductive Medicine (ASRM)
This ASRM Ethics Committee Report published in 2019 highlights the need for shared information in the consent process, addresses preferences expressed by donors over who should receive their gametes…- ethics committee opinion
- embryo donation
- gamete donation
- American Society for Reproductive Medicine
- ASRM
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Additional Resource
Consensus Study Report, Health Standards for Long Duration and Exploration Spaceflight: Ethics Principles, Responsibilities, and Decision Framework, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2014)
This publication reports the conclusions and recommendations of a committee of experts convened by the Institute of Medicine of the National Academies (IOM) to develop an ethics framework for…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Workshop Proceedings, Military Medical Ethics: Issues Regarding Dual Loyalties, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2008)
This National Academies Press publication summarizes a one-day workshop, Military Medical Ethics: Issues Regarding Dual Loyalties, convened by the Institute of Medicine of the National Academies on…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Consensus Study Report, Responsible Research with Biological Select Agents and Toxins, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2009)
This National Academies Press publication documents the evidence-based consensus of a committee of experts on the physical security of laboratories and the reliability of personnel with access to…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Consensus Study Report, A New Biology for the 21st Century, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2009)
This National Academies Press publication documents the evidence-based consensus of a committee of experts on the integration of disciplines to create a biological research community capable of…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding