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Publication
A qualitative study exploring the consumer experience of receiving self-initiated polygenic risk scores from a third-party website
European Journal of Human Genetics -
Publication
Expanding the Australian Newborn Blood Spot Screening Program using genomic sequencing: Do we want it and are we ready?
European Journal of Human Genetics -
Publication
Changes in opinions about human germline gene editing as a result of the Dutch DNA-dialogue project
European Journal of Human Genetics -
Publication
Old and new challenges regarding comparable and viable data sharing in population-scale genomic research
European Journal of Human Genetics -
Publication
Immortal data: A qualitative exploration of patients’ understandings of genomic data
European Journal of Human GeneticsLyle and colleagues analyze how patients and their relatives conceptualize the “immortality” of genomic data. They find that participants focus on the simplicity of providing a sample instead of the… -
Publication
Social and ethical implications of integrating precision medicine into healthcare
Springer, Cham -
Publication
Citizens' attitudes, knowledge, and educational needs in the field of omics sciences: A systematic literature review
Frontiers in Genetics -
Publication
Managing prognosis in precision medicine: Utility, imagination, and communication
Children -
Publication
Limitations, concerns and potential: Attitudes of healthcare professionals toward preimplantation genetic testing using polygenic risk scores
European Journal of Human Genetics -
Publication
Videoconferencing to deliver genetics services: A systematic review of telegenetics in light of the COVID-19 pandemic
Genetics in Medicine