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Grant Abstract
Ethnicity, Citizenship, Family: Identity after the HGP
This project will bring together an interdisciplinary working group of scholars to explore these questions. During a three year period, it will meet to develop the language, criteria, and conceptual…- behavioral /social science research tag
- community
- culture
- Ethnic group
- family structure /dynamics
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Grant Abstract
The Promises and Pitfalls of Native Genetic Research
The goal of this project is to explore the range of ethical, legal, and social implications of genetic research and health services with Indian and Native peoples. These issues have proven to be…- behavioral /social science research tag
- Clinical Research
- culture
- Ethics
- Experimental Designs
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Grant Abstract
Expanded Newborn Screening for Metabolic Disorders
The aims of this study are to: - compare newborn identification of biochemical genetic disorders by expanded screening with clinical identification in term of the interaction between the parents and…- behavioral /social science research tag
- child rearing
- Clinical Research
- data collection methodology /evaluation
- developmental psychology
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Grant Abstract
Culture and Family Interpretation of Genetic Disorders
The overall aim of this ethnographic and longitudinal project is to assess how parents from different cultural backgrounds who have a child or who are at risk for having a child with a genetic…- African American
- behavioral /social science research tag
- Belief
- caucasian American
- Clinical Research
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Grant Abstract
Genetic Testing And The Economics of Life Insurance
The purpose of this project is to estimate the likely effects of testing for BRCA1 and BRCA2 mutations on the cost and price of life insurance contracts, under conditions where insurance companies do…- behavioral /social science research tag
- brca gene
- breast neoplasms
- Clinical Research
- Computer Simulation
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Grant Abstract
Expanded Newborn Screening for Metabolic Disorders (II)
The primary objective of this study, first begun in 1999, is to compare newborn identification by expanded screening to clinical identification in children with biochemical genetic disorders in terms…- behavioral /social science research tag
- child physical development
- child psychology
- Children
- Clinical Research
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Grant Abstract
Routes of Access to Genetic Services For Rural KY Women
The purpose of the proposed project is to deepen empirical understanding of reproductive genetic services in rural areas, through a comparative case study of genetic counseling, testing, and related…- assistive reproductive technique
- behavioral /social science research tag
- case history
- Clinical Research
- culture
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Grant Abstract
Bringing the 22qll.2 Deletion into the 21st Century
This project is a 4-day international symposium for families with and professionals interested in the 22q11.2 deletion syndrome. The conference will be held from June 22-25, 2000 at the Penn Towers…- gene deletion mutation
- genetic disorder
- meeting /conference /symposium
- Travel
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Grant Abstract
Consumer Perspectives on the Promise of CF Gene Therapy
In this study, the Education Development Center, Inc., in collaboration with the International Association of Cystic Fibrosis Adults (IACFA), Temple University, St. Vincent's Hospital, and…- Attitude
- behavioral /social science research tag
- Belief
- Clinical Research
- Cystic Fibrosis
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Grant Abstract
Beyond stigma: Interpreting Genetic Difference
The proposed project will determine the factors with which people distinguish genetic from non-genetic disease, and the factors that they bring to bear in interpreting genetic diseases or conditions…- behavioral /social science research tag
- Clinical Research
- culture
- Ethnic group
- genetic disorder