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Grant Abstract
Data-Sharing and Data-Withholding in Genetics Research
The specific aims of this study are to: confirm and extend previous work on the prevalence and nature of data sharing and withholding in academic genetics and its subfields; investigate the factors…- Data Collection
- Genetics
- governmental health /scientific organization
- health /scientific organization
- health administration
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Grant Abstract
History of Breast Cancer Risk, 1900-Present
This project is focused on the ways in which two diagnostic technologies--screening mammography and genetic testing--emerged, diffused, interacted with medical and social thought and values, and…- behavioral /social science research tag
- breast neoplasm /cancer diagnosis
- breast neoplasms
- cancer prevention
- cancer risk
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Grant Abstract
Consumer Conference on Genetics and Hearing Loss Research
This project will conduct a one-day symposium for consumers on a topic of critical concern to hard of hearing consumers, that of genetics and hearing loss at the time of the 14th International…- hearing disorders
- meeting /conference /symposium
- neurogenetics
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Grant Abstract
Beliefs and Attitudes Towards Hereditary Prostate Cancer
This study will investigate the opinions of individuals from prostate cancer families ascertained in an ongoing prostate cancer family study, conducted since 1996 in San Antonio, Texas. Fifteen…- Attitude
- behavioral /social science research tag
- Belief
- data collection methodology /evaluation
- family genetics
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Grant Abstract
Publicizing Genetic Discoveries: The Impact of the Media
This study will analyze the process of publicizing new genetic discoveries, and the impact of medical reports on consumers and providers. Under specific aim 1 (SA1), the investigators will conduct…- Genetics
- health science research
- health science research analysis /evaluation
- human subject
- mass information media
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Grant Abstract
Genetics Legislation: Syntax, Science and Policy
Although scholars have offered valuable policy recommendations, lawmakers lack a source of comprehensive, clear, and unbiased research concerning the ethical, technical, and legal issues that…- employment /unemployment
- family structure /dynamics
- Genetics
- health care policy
- health insurance
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Grant Abstract
Genetic Education for Native Americans
This 3 year project intends to modify existing genetics education curricula to create culturally competent education interventions (i.e., independent modules and a 20-hour comprehensive intervention…- adult human (21+)
- community
- culture
- education evaluation /planning
- Genetic Counseling
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Grant Abstract
SPUSA 1999 International Conference Genetic Portions
Student Pugwash USA (SPUSA) will hold an international conference, 'Science and Social Responsibility in the New Millennium,' June 28-July 4, 1999. This event, which will bring 200 students…- biotechnology
- computer data analysis
- Ethics
- Genetics
- Genome
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Grant Abstract
7th Biennial Symposium on Minorities and Cancer
This project provides support for the 7th Biennial Symposium on Minorities, the Medically Underserved &Cancer. The Symposium was held February 27-March 3, 1999, at the Grand Hyatt Washington…- cancer prevention
- Ethnic group
- medical indigency
- meeting /conference /symposium
- neoplasm /cancer
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Grant Abstract
Genetic Testing, Disabilities, and the Quality of Life
This study will examine the significance accorded to disability in judgements about quality and value of human lives, focusing on two domains in which such judgments are of central importance…- behavioral /social science research tag
- Clinical Research
- Decision Making
- disease /disorder classification
- Ethics