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Grant Abstract
Engaging adolescents in decisions about return of genomic research results
The purpose of this study is to assess assenting and consenting adolescents choices about learning genomic research results. We will refine existing decision tools and processes to promote informed…- Adolescent
- Adult
- Age
- American
- anxiety states
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Grant Abstract
Genetic Privacy and Identity in Sexual and Gender Minorities: GetPrISM
Sexual and gender minorities (SGMs) experience significant disparities in health and health care. These inequities result from complex interactions among social, political, environmental, and genomic…- Academic Medical Centers
- Address
- Advocate
- Affect
- Attitude
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Grant Abstract
Organizational and Cultural Dynamics in Genomics Companies: Industry Engagement in Navigating Social and Ethical Issues
This K99/R00 Award is designed to generate scholarship and interventions to guide genomics companies towards more just practices. It does so through a five-year training and research project, which…- Agreement
- American
- Area
- Attention
- Award
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Grant Abstract
Prenatal Preparation: Actions and Results
Recent expansions in prenatal genetic testing have renewed concerns from both disability advocates and right- to-life movements that these tests serve primarily to enable elective terminations,…- Advocacy
- Advocate
- Bioethics Consultants
- Child
- Clinical
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Grant Abstract
ELSI Biennial Congress
For nearly three decades, the National Human Genome Research Institute (NHGRI) has supported the study of the ethical, legal and social implications (ELSI) of genetic and genomic research for…- American
- base
- Bioethics
- Biomedical Research
- Budgets
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Grant Abstract
Exploring Choice of Law Challenges in Multi-Site Precision Medicine Research
Through the combined study of individual variation in genes, environment, and lifestyle, precision medicine research offers the potential for discoveries that will improve human health. Spurred by…- Academic Medical Centers
- Accounting
- Address
- Agreement
- Attention
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Grant Abstract
Implementation and Implications of Sickle Cell Trait Screening in the NCAA
In 2010 the National Collegiate Athletic Association (NCAA) adopted a mandatory sickle cell trait (SCT) screening policy for student-athletes in its Division I (DI) colleges and universities.…- Adopted
- Affect
- African American student
- Area
- Athletic
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Scholar
Jay Clayton
- Literature and genetics
- Film, television, and genetics
- Medical humanities
- genetic privacy
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Scholar
Debra Skinner
- Medical Anthropology
- Sociocultural implications of genetic/genomic research and diagnostic medicine
- Newborn screening
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Scholar
Amy L. McGuire
- data sharing
- Emerging Technologies
- Direct-to-consumer genetic testin
- Investigative genetic genealogy
- Clinical sequencing