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Grant Abstract
Development of recommendations and policies for genetic variant reclassification
As genomic sequence data are being produced faster and at lower cost, the most significant challenge in clinical genetic testing today is variant classification. Currently, there are marked…- adverse outcome
- Advocate
- Affect
- Agreement
- Algorithms
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Grant Abstract
Genetic data partnerships: Enabling equitable access within academic/private data sharing agreements
Candidate: Kayte Spector-Bagdady, JD, MBE, is an attorney and medical ethicist focused on the governance of secondary research use of human specimens and genetic data. Her long-term career goal is to…- career
- career development
- Clinical
- clinical care
- Communities
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Grant Abstract
Respect for Persons in the Genomics Research Enrollment Process: Incorporating Diverse Experiences and Attitudes
Stephanie Kraft, JD, is an Acting Instructor in the Division of Bioethics, Department of Pediatrics, University of Washington School of Medicine. She has a background in law and economics and has…- Advisory Committees
- Asians
- Attitude
- Award
- base
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Grant Abstract
Integrating Ethics into Machine Learning for Precision Medicine
The application of new computerized methods of data analysis to vast collections of medical, biological, and other data is emerging as a central feature of a broad vision of precision medicine (PM)…- Algorithms
- Artificial intelligence
- Awareness
- base
- Big Data
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Grant Abstract
Ethical, Legal, Social and Governance Issues in Non-Traditional Genetics and Genomics
A large and highly heterogeneous group of individuals conducts genetic and genomic research outside of traditional corporate and academic settings. They can be an important source of innovation, but…- agriculture
- Animals
- Archaea
- Attention
- Bacteria
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Grant Abstract
Understanding All of Us Enrollees and Decliners Motivations to Enhance Recruitment and Retention
The proposed project is a qualitative study of recruitment and retention into the All of Us Research Program (AoURP) at a federally qualified health center (FQHC). A key component of the NIH's…- African American
- All of Us Research Program
- Anxiety
- barrier to care
- care systems
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Grant Abstract
Microbiome-Based Diagnostics: Stakeholder Perceptions and Implications for the Regulatory Framework
The state of knowledge regarding the human microbiome is advancing rapidly and a burgeoning new area of research and development is microbiome-based diagnostics. There is much that is not yet known…- Award
- Baltimore
- base
- Benefits and Risks
- Bioethics Consultants
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Grant Abstract
ELSI.hub: National Center for ELSI Resources and Analysis
ELSI.hub (a National Center for ELSI Resources and Analysis) is a collaboration between Stanford University, Columbia University and partners at the Hastings Center and Harvard University, whose…- American
- Awareness
- base
- Bioethics
- Bioinformatics
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Grant Abstract
Developing Clinical Translational Tools to Communicate Genetic Risk to Individuals who are at Clinical High Risk for Psychosis
Great strides are being made in identifying early signs that put people in a 'high risk state' for illnesses, enabling identification during what has been called a 'high risk state…- Abbreviations
- Address
- Age
- Attenuated
- base
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Grant Abstract
Preparing for Genomic Editing Technologies: An Anticipatory Approach
Human genome editing is a powerful tool for creating precise changes to the genome, an organism+D6s complete set of genetic material. With these advances has come an explosion of interest in the…- Address
- Adopted
- base
- Basic Science
- Belief