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ELSIcon2022 Panel: How does Genetics and Racial Disparities influence Stillbirth Risk and Reoccurrence?
ELSIcon2022 • Panel • May 27, 2022 Tsegaselassie Workalemahu, Sarah Heerboth, Naomi, Riches, Erin Rothwell Stillbirths account for most perinatal deaths and almost half of them are attributed to an…- Uptake of genetic testing
- Genetic testing and screening
- Panel
- Pre-Recorded
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Video
ELSIcon2022 Paper: Genetic Options and Constraints: How Genetic Ancestry Tests Change Ethnic Identities
ELSIcon2022 • Paper • May 27, 2022 Şule Yaylacı, Wendy Roth An estimated 15% of all U.S. adults have taken genetic ancestry tests (GATs). Recent studies have found that many test-takers change…- genetic identity
- Paper
- Pre-Recorded
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Video
ELSIcon2022 Flash: Genetic Attribution and Felt Stigma in People with Epilepsy
ELSIcon2022 • Flash • May 27, 2022 Ruth Ottman, John B. Wetmore Among people with epilepsy, felt stigma remains common and significantly impacts quality of life. In our previous study of families…- Stigma and discrimination
- Genetic testing and screening
- Flash
- Pre-Recorded
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Video
ELSIcon2022 Paper: Family Secrets Revealed: Experiences and impacts of participating in direct-to-consumer genetic relative-finder services
ELSIcon2022 • Paper • May 27, 2022 Christi Guerrini, Jill Robinson, Cinnamon Bloss, Whitney Bash Brooks, Stephanie M. Fullerton, Brianne Kirkpatrick, Sandra Soo-Jin Lee, Mary Majumder, Stacey…- Relative finding/matching
- Genetic testing and screening
- Paper
- Pre-Recorded
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Video
ELSIcon2022 Paper: Exploitation in Genetics Research: Vulnerability, Unfairness, and Degradation
ELSIcon2022 • Paper • May 27, 2022 Naomi Scheinerman While the concern of “exploitation” features quite prominently in bioethics, such as in patient payment for participation in genetics research,…- Language and categorization
- Biobanking and genomic databases
- Paper
- Pre-Recorded
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Video
ELSIcon2022 Paper: Examining Embeddedness: A Call for Principles and Best Practices for Integrating ELSI
ELSIcon2022 • Paper • May 27, 2022 Jenny Reardon, Stephanie M. Fullerton, and Sandra Soo-Jin Lee Increasingly, public and private funders have come to recognize the critical significance of…- Reflections on the ELSI field
- equity and justice in genetics
- Paper
- Pre-Recorded
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Video
ELSIcon2022 Paper: Cystic Fibrosis Communities: Shifting Sites of Prognostic Imagination
ELSIcon2022 • Paper • May 27, 2022 Rebecca Mueller Long before COVID-19 made social distancing normal, people with cystic fibrosis already practiced such behaviors. Between the 1980s and the…- Lived experience of genetic conditions
- Race, disability, and gender studies
- Paper
- Pre-Recorded
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Video
ELSIcon2022 Flash: Conceptualization and Measurement of Genetic Literacy
ELSIcon2022 • Flash • May 27, 2022 Brianne Daly, Kimberly Kaphingst Genetic literacy, a construct often thought of as genetics-related knowledge and skills, is critical to individuals being able to…- Language and categorization
- Methodology and study design
- Flash
- Pre-Recorded
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Video
ELSIcon2022 Paper: Community Perspectives on Electronic Consent Education for the Retention of Newborn Screening Bloodspots
ELSIcon2022 • Paper • May 27, 2022 Erin Rothwell, Caren Frost, Bob Wong, Erin Johnson Promoting informed decision making for research while concurrently advancing equity and justice for underserved…- Attitudes about sharing biological samples and health data
- Biobanking and genomic databases
- Paper
- Pre-Recorded
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Video
ELSIcon2022 Paper: Awareness and Utilization of Genetic Testing among Hispanic/Latino Adults Living in the US: The Hispanic Community Health Study/Study of Latinos
ELSIcon2022 • Paper • May 27, 2022 Kurt D. Christensen, Mengran Zhang, Lauren Galbraith, Einat Granot-Hershkovitz, Sarah Nelson, Sara Gonzalez, Maria Argos, Krista Perreira, Martha Daviglus, Carmen…- Uptake of genetic testing
- Health Disparities
- Paper
- Pre-Recorded