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Publication
Response to open peer commentaries on “Privacy and health practices in the digital age”
The American Journal of Bioethics -
Publication
Genetics professionals are key to the integration of genetic testing within the practice of frontline clinicians
Genetics in Medicine -
Publication
An AI bill of rights: Implications for health care AI and machine learning—A bioethics lens
The American Journal of Bioethics -
Publication
“Extremely slow and capricious”: A qualitative exploration of genetic researcher priorities in selecting shared data resources
Genetics in Medicine -
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Publication
Establishing a blockchain-enabled Indigenous data sovereignty framework for genomic data
CellMackey and colleagues describe how Indigenous data sovereignty (IDS) principles could be operationalized with blockchain technology. -
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Publication
How do genetic tests answer questions about neurodevelopmental differences? A sociological take
Developmental Medicine and Child Neurology -
Publication
Should health systems share genetic findings with at-risk relatives when the proband is deceased? Interviews with individuals diagnosed with Lynch syndrome
Journal of Patient-Centered Research and ReviewsThe consensus among the participants interviewed by Hunter and colleagues was that health systems should inform relatives of genetic findings following a patient’s death; should deliver them a few…