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Publication
Severity in the genomic age: The significance of lived experience to understandings of severity
European Journal of Human Genetics -
Publication
Balancing the rights of the pre-symptomatic child to be found with the risk of harm to others from the screening process
European Journal of Human Genetics -
Publication
Termination of pregnancy for fetal malformations and severe genetic disorders: What are the laws in Europe?
European Journal of Human Genetics -
Publication
Harmonizing HTA evidence needs and expectations: Challenges and opportunities to improve evidence generation, ensure access and affordability
Clinical Pharmacology & Therapeutics -
Publication
Addressing risk in data centric research via community engagement
The American Journal of Bioethics -
Publication
From data to harm: Exploring ethical and social implications of polygenic scores for social traits
The American Journal of Bioethics -
Publication
Common Rule revisions to govern machine learning on Indigenous data: Implementing the expectations
The American Journal of Bioethics -
Publication
Are employees ready to engage in genetic cancer risk assessment in the workplace setting?
European Journal of Human Genetics -
Publication
Negotiating severity behind the scenes: Prenatal testing in Germany
European Journal of Human Genetics -
Publication
The majority of parents of children undergoing genetic testing report preference for earlier genetic counseling appointments
Journal of Genetic Counseling