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Publication
Returning value from the All of Us Research Program to PhD-level nursing students using ChatGPT as programming support: Results from a mixed-methods experimental feasibility study
Journal of the American Medical Informatics Association -
Publication
Communicating research findings as a return of value to All of Us Research Program participants: Insights from staff at Federally Qualified Health Centers
Journal of the American Medical Informatics Association -
Publication
Engagement with health research summaries via digital communication to All of Us participants
Journal of the American Medical Informatics Association -
Publication
Returning value to communities from the All of Us Research Program through innovative approaches for data use, analysis, dissemination, and research capacity building
Journal of the American Medical Informatics Association -
Publication
Data ownership in genomic research consortia
Journal of Law and the Biosciencesby Jane Nielsen & Dianne Nicol -
News
ELSI in Review • January 2025
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our January 2025 set explores public perceptions of genetic…- gene therapy
- CRISPR-Cas9
- Polygenic risk scores
- Biobanking
- Artificial intelligence
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Scholar
Onochie Okoye
- Best practices for clinical and research ethics consultation
- Bioethics Education
- Clinical Ethics
- Ophthalmology
- genetic disorder diagnosis
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Video
December 2024 EFF: Building a Diverse ELSI Workforce: What does this mean and how should we do it?
Bioethics as a field was catalyzed by grave injustices such as the US Public Health Service Untreated Syphilis Study at Tuskegee. Similarly, a major rationale for ELSI was to address the injustices…- diversity
- challenges
- Engaging diverse communities
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Scholar
Terese Knoppers
- Health and healthcare inequalities
- access to healthcare
- Qualitative research
- Community Engagement
- Stakeholder Engagement