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This 28 second video for American Indian and Alaska Native participants briefly introducs the concept of consent. It was created to be used in the All of Us Research Program (All of Us), which is a…

This 22 second video for American Indian and Alaska Native participants explains the required contact information and the efforts the All of Us Research Program (All of Us) will undertake to find and…

This 22 second video for American Indian and Alaska Native participants explains the required contact information and the efforts the All of Us Research Program (All of Us) will undertake to find and…

To examine participants' views of prenatal testing, Steinbach and colleagues developed a scenario that describes a 40-year-old pregnant patient who is offered prenatal screening for trisomies 13…

Guerrini and colleagues designed the Genetic Genealogy Experiences Survey to gather information about the experiences of users of genetic relative-finder services offered by direct-to-consumer…

Courtright-Lim designed this decision tree to help researchers, funding agencies, institutional review boards, and ethics committees determine when social interventions may result in a better use of…

This consent form is utilized by the All of Us Research Program (All of Us), a health research program, funded by the National Institutes of Health, that will study health data from over one million…

This form includes information for participants and collects a consent for the the All of Us Research Program (All of Us) to access to their electronic health records. All of Us is a health research…

Bukini and colleagues designed the vignette used in theis study to explore the importance of shared decision making about research participation in Ghana and Cameroon. The vignette, available in the…

Wonkam and colleagues designed this survey to gather information about how Cameroonian parents with SCA-affected children feel towards prenatal diagnosis and termination of an affected pregnancy.