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Technologies to Operationalize Indigenous Data Sovereignty
Throughout history, data about Indigenous communities, cultures, and territories have been collected and collated through research and surveillance as part of processes of colonisation and…- Indigenous data
- Indigenous Communities
- Big Data
- decolonization
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News
21,000 GenETHX Records Added to the ELSIhub Publications Database
We are excited to announce the migration of over 21,000 publications from the Genetics and Ethics Database (GenETHX) created by the Bioethics Research Library (BRL), Kennedy Institute of Ethics (KIE…- ELSI publications
- GenETHX
- Georgetown University, Kennedy Institute of Ethics, Bioethics Research Library
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In the Media
Whole Genome Sequencing in Babies Proves Mettle
MedPage Today |John Gever- neonatal sequencing
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News
Genomics in Society: New Developments, New Questions: Discussions with Journalists
SERIES INFORMATION Journalists, journalism students, journalism educators and all interested parties: please join us on for a series of discussions on "Genomics in Society: New Developments, New…- ELSI
- Journalism
- Sociogenomics
- Behavioral genomics
- forensic DNA
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In the Media
Court dismisses challenge to U.K. law allowing abortion of a fetus with Down syndrome until birth
CBS News |- Legal Aspects of Abortion
- Eugenic Abortion
- Down Syndrome
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In the Media
If I Could Use Gene Therapy to Cure My Manic-Depression, I Don’t Know Whether I Would
Slate |Ana Wojczuk- Bipolar Disorder
- human gene therapy
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News
FAQs on Human Genomics Studies
FAQs on Human Genomics Studies are produced and managed by The Hastings Center "The need for socially responsible communication about genomics research is greater than ever. New research into…- FAQs
- FoGS
- knowledge repository
- Behavioral genomics
- Behavioral and Social Science
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In the Media
Picking Embryos With Best Health Odds Sparks New DNA Debate
Bloomberg |Carey Goldberg- Human heritable genome editing
- pre-implanation genetic testing
- Polygenic risk scores
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In the Media
I’m Haunted by Sisters With Sickle Cell: Two Thrived. Two Suffered.
The New York Times |Gina Kolata- sickle cell disease
- health inequalities