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Publication
Hope versus reality: Parent expectations of genomic testing
Patient Education and Counseling -
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Publication
“It’s something I’ve committed to longer term”: The impact of an immersion program for physicians on adoption of genomic medicine
Patient Education and Counseling -
In the Media
Collect more data from Africa to improve gene therapy
Nature Outlook |Ambroise Wonkam- sickle cell disease
- African genomics
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News
Creating and Sharing Animated Videos to Communicate ELSI Concepts: An Interview with Mildred Cho
In August, Mildred Cho, PhD, a long-time member of the ELSI scholarly community, and Professor in the Department of Pediatrics, Division of Medical Genetics and in the Department of Medicine at…- research tools
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Grant Abstract
Disability, diversity and trust in precision medicine research: stakeholdersengagement
Project Narrative Studies suggest that distrust is a major barrier for participation of minorities in Precision Medicine Research (PMR), though no study has examined the sources of (dis)trust and…- Adult
- Affect
- African American
- Alaska Native
- American Indians
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Grant Abstract
Social Determinants of Participation in Genetic Research among Puerto Ricans and in the Puerto Rican Diaspora
Puerto Ricans are especially at risk of experiencing distributive injustice, or the structural exclusion from participating in genetic research that could potentially benefit them. Our existing…- Address
- Attitude
- Belief
- Belmont Report
- benefit sharing
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Collection
Ethical, Legal, and Social Implications (ELSI) of DNA-based Technologies for Disaster Victim Identification (DVI)
As we mark the 20th anniversary of the attacks on the World Trade Center and Washington, D.C. that occurred on September 11, 2001, we reflect on the pain and loss of the events that shook the entire…- DNA-based technology
- Disaster victim identification (DVI)
- Identity sciences
- DNA identification
- natural disaster
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Scholar
Sebastian Sattler
- biotechnology
- cognitive enhancement
- Quantitative data analysis
- Medical Sociology
- Vignette experiments
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News
Request for Abstracts: ELSIcon2022
ELSIcon2022: Innovating for a Just and Equitable Future June 1-3, 2022 • Columbia University, New York, NY Research on the ethical, legal, and social implications (ELSI) of genetics research…