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Grant Abstract
Sharing Qualitative Research Data: Identifying and Addressing Ethical and Practical Barriers
Project Narrative This project will identify and reduce ethical and practical barriers to sharing qualitative research data. It will develop new resources to increase data sharing in an ethical…- Addiction
- Address
- Adoption
- Algorithms
- Attitude
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Video
ELSIcon2022 Panel: Sharing Data: Speedbumps on the Translational Trail
ELSIcon2022 • Panel 10 • June 1, 2022 Kathryn Maxson Jones, Vasiliki Rahimzadeh, Kayte Spector-Bagdady, Robert Cook-Deegan This panel features three talks by women researchers empirically…- Live
- Panel
- Data and data stewardship
- equity and justice in genetics
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News
ELSI in Review • November 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our November 2023 set explores the ethics of risk prediction… -
News
ELSI in Review • March 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our March 2023 set explores the ethics of gene therapy,… -
Video
ELSIcon2022 Paper: "Extremely slow and capricious:" Genetic Researcher Experiences Using Shared Data Resources
ELSIcon2022 • Paper • June 3, 2022 J. Scott Roberts, Kayte Spector-Bagdady The National Institutes of Health (NIH) is investing vast resources into building accessible and demographically…- Live
- Paper
- Data and data stewardship
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News
ELSI in Review • April 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our April 2023 set explores AI innovations in the Tanzanian…