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Grant Abstract
Interactive multimedia consent for biobanking
Interactive Multimedia Consent for Biobanking Abstract Many biobanks in the U.S. consent thousands of contributors of biospecimens and health information. There is growing interest in the efficiency…- biobank
- Caucasians
- Cognition
- Communities
- compare effectiveness
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Grant Abstract
Engaging adolescents in decisions about return of genomic research results
The purpose of this study is to assess assenting and consenting adolescents choices about learning genomic research results. We will refine existing decision tools and processes to promote informed…- Adolescent
- Adult
- Age
- American
- anxiety states
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Grant Abstract
Developing Evidence-Based Guidance for Engaging Rural Residents in the Deep South in Genomics Research: A Stakeholder-Driven Perspective
Narrative The diversification of genomics research cohorts is a national priority intended to accelerate research and improve individualized prevention, treatment and care. Concrete, tailored…- Accountability
- Alabama
- Attention
- behavioral sciences
- biobank
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Grant Abstract
Engaging adolescents in decisions about return of genomic research results
PROJECT NARRATIVE: Recent recommendations to return children?s results for adult-onset conditions to parents anytime whole exome or genome sequencing is performed, as well as growing expectations to…- Address
- Adolescent
- Adult
- Age
- American
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Grant Abstract
Health care system-led familial risk notification: design and ethical assessment
PROJECT NARRATIVE Health systems could work with genetic patients by directly notifying relatives who receive care in the same health system, but no U.S.-based care models have emerged and many…- actionable mutation
- Address
- base
- behavior test
- brca gene
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Grant Abstract
Health care system-led familial risk notification: design and ethical assessment
PROJECT NARRATIVE Health systems could work with genetic patients by directly notifying relatives who receive care in the same health system, but no U.S.-based care models have emerged and many…- actionable mutation
- Address
- base
- behavior test
- BRCA1 gene
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Grant Abstract
MBARARA UNIVERSITY RESEARCH ETHICS EDUCATION PROGRAM (MUREEP)
The volume of international research in sub Saharan Africa is increasing largely because of the continents unique high burden of diseases such as malaria, HIV and more recently non-communicable…- Address
- Administrator
- Africa South of the Sahara
- African
- Award
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Grant Abstract
Feasibility of an Innovative Method to Understand the Dynamics of Choice and Create Diversity in Genomics Research among Older African Americans
PROJECT NARRATIVE In response to the continued underrepresentation of African Americans in aging research involving genetic material, this study seeks to test the feasibility of an innovative method…- Adult
- African American
- aged
- Aging
- Alzheimer's Disease
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Grant Abstract
Organizational and Cultural Dynamics in Genomics Companies: Industry Engagement in Navigating Social and Ethical Issues
This Pathway to Independence Award (K99/R00) investigates and leverages perspectives from members of the health-related private sector genomics industry, to develop guidance for improving approaches…- Address
- Agreement
- American
- Area
- Attention
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Grant Abstract
Organizational and Cultural Dynamics in Genomics Companies: Industry Engagement in Navigating Social and Ethical Issues
This Pathway to Independence Award (K99/R00) investigates and leverages perspectives from members of the health-related private sector genomics industry, to develop guidance for improving approaches…- Address
- Agreement
- American
- Area
- Attention